Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: miserableMOE
  • January 17, 2007
  • 04:48 PM

Just by dumb luck I found this website. I am losing patience with my Doctors and feel that the loony bin is right around the corner for me. Maybe somebody can give me some insight.
I am a 34 yr old white female. I have been suffering from headaches for sometime now. Have 1 everyday. In March 2006, I had my 1st migraine. (how fun are they?) Had about 9 attacks in 2006. Around the same time, I began what I believed to be hot flashes. Dr. told me may be start of the change...at 34? OK..whatever. Then I talk to people and they tell me that hot flashes are like 10 seconds to 10 minutes. Well, my flashes are what I now consider "episodes", last 45 minutes to 1 1/2 hour a couple times a day. And before I gained 20 lbs in 2006 (another problem) I was always 115 lbs and freezing always. I have had kidney disease my whole life and had some massive infection in Oct 2006. Lasted about 2 weeks. At that time Dr. took blood. Got the results back and my NOROEPINEPHRIN level was 600 !! Supposed to be 0-399 ! Was then told about PHEOCHROMCYTOMA! A tumor of the adrenal gland. My wonderful insurance company will not pay for a PET scan. Now trying to get me to have a CT. Waiting for INS CO again.... Does anybody have or know somebody that has this disease? I am scared to death. Most sites say that the tumors are about 10 % cancer BUT my mother had cancer at 55 and passed away. They never determined her primary site but guess where she had a tumor?...on her adrenal gland. I am so exhausted all the time and I have no more tears to cry. My energy level is at a constant 0. PLEASE HELP ME :(

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