Discussions By Condition: I cannot get a diagnosis.

Intense, scary, long-lasting vertigo...

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: Anonymous
  • January 4, 2007
  • 00:32 AM

For the past couple of months I have been having occasional bouts of very severe vertigo (2-3 times). Each time it lasts from an hour, to several hours.

This weekend I had the most severe bout yet. I was sitting on the couch chatting with my fiance, when things started to go kind of wonky around 6pm, like the room was moving, even though I wasn't. It went away for the most part, and I thought everything was all right. I still became a little dizzy every few minutes, but it was mild and faded. An hour later it started to hit me like a ton of bricks. The room was spinning so bad I was scared to walk, and it didn't matter if I was sitting, laying down, or what have you - it was just as intense either way. My fiance had to walk me to the bedroom, because I finally decided I had better lay down, as I was starting to feel nauseous. About 15 minutes later I started to holler for him to bring me a bucket or something just incase I vomited, but he couldn't here me. It was so abd I was in tears and quite scared. I fell off the bed and literally dragged myself to the door because it felt like I was falling even then. He had to put me back into bed. It lasted for several hours, well past midnight, when I finally fell asleep. I couldn't even go to the bathroom by myself, he had to walk me there and hold me upright. It didn't matter what I was doing or what position I was in, it felt like the room was spinning wildly around me, and I could focus on anything, let alone put one foot (or even knee) in front of the other to walk or crawl.

I'm going in to see the doctor, but she has brushed off the lesser spells twice before. This spell was the longest lasting yet, and was accompanied by unclear vision (I could see, but felt like it wasn't me looking at what I was looking at, does that make sense?), nausea, but no vomiting (though I wanted to), and a sharp pain in the left side of my head, around the temple, left eye area. It was very scary for me and my fiance. We have a small child, and I'm worried this will happen again when I am home alone with him.

Can anyone please help? What is wrong with me? Does this happen to other people, or should I be as worried as I am? Are we overreacting? What should I say to the doctor if she brushes it off again?

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20 Replies:

  • No one has a clue? Help!I thought the following information might be helpful as well:-I've been seeing a chiropractor for the past couple of months for a neck problem I've had for years. She gave me the correct terminology, and I can't think of it just now. It affects the left side of my neck and reduces my range of motion to almost nothing (turning head, etc.) and is severely painful. It has something to do with the vertebrae/joints rubbing together, though I thought it was a pinched nerve, but she said its something that feels that way but isn't.-The vertigo doesn't occur in any relation to chiropractic visits.-I am 22, a business coach, spending most of my day at a desk-I have spent the past several months battling intense fatigue and exhaustion, and a noticeable weight gain.What about a thyroid problem or some sort of blood pressure problem? Is that a possibility for someone my age?I've also been experiencing abdominal pain etc. (my original reason for today's doctor's visit) - seemingly women troubles or something, but I think that would be unrelated.Help? Anyone? Any ideas? I see the doctor today at 3:30....
    Anonymous 42,789 Replies
    • January 4, 2007
    • 00:54 PM
    • 0
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  • I had the exact same symptoms before and had to take Meclizine which makes me drowsy. My diagnosis was TMJ. It was my jaw. My headaches became severe. Do you have any jaw tightness or clicking? Even if you don't it may be TMJ, sometimes it has no obvious symptoms. I grind my teeth badly at night and didn't know it until I got treatment and a retainer.
    Anonymous 42,789 Replies
    • January 4, 2007
    • 06:06 PM
    • 0
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  • Tmj would cause the headache, also a sinus infection would cause it as well, TMJ and sinus issues both can affect the inner ear, which can cause nasty vertigo. I've had vertigo for about a month and know it is either connected to my tmj or sinus infection. If you are experiencing headaches above one eye or both and a feeling of pressure that comes with it, it can definitely be a sinus infection. Having said both of these, I would definitely tell your doctor about the latest episode and mention the issue of blurred vision. It doesn't hurt to get a ct scan, even if it's for your peace of mind. Hope this helps.
    Anonymous 42,789 Replies
    • January 4, 2007
    • 06:17 PM
    • 0
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  • Well had my appt with the doctor today. She's sending me immediately for a CT Scan because of my age and lack of other symptoms (no sinus/ear problems visible). I supposed to go to the ER immediately with the next episode. Once we get results from the CT Scan, she can go from there, assuming the CT Scan comes back clear. I'm a little scared because she was so adamant about the CT Scan right away and said she wouldn't normally send a person right off, but she felt it was for the best???
    Anonymous 42,789 Replies
    • January 5, 2007
    • 03:43 AM
    • 0
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  • Labrynthitis. Read up on it, sounds like what it is to me. It is very similar to episodes I have had. However, mine lasts much longer. The severe episodes with vomitting for 3 or so days, then it takes 3 months for vertigo to taper off. I have had 2 bouts with it. I understand, it is very scary & miserable.
    Anonymous 42,789 Replies
    • January 5, 2007
    • 03:50 AM
    • 0
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  • Could be some funky migraines, an inner-ear problem like Meniere's Disease, or a low blood pressure disorder. Let us know the diagnosis.
    Anonymous 42,789 Replies
    • January 5, 2007
    • 04:46 AM
    • 0
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  • could be addison's disease. it causes vertigo.
    Anonymous 42,789 Replies
    • January 5, 2007
    • 06:56 AM
    • 0
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  • I am suffering from this too. I am getting myself checked out for TMJ/TMD because MRI was clear, audiogram was good, but my caloric tests revealed weakness in the left vestibular system. From why, the ENT had no idea, but coincidentally I have had jaw issues on the left side as well with an array of symptoms. My regular dentist said it was nothing. So I am going to an Oral & Maxillofacial Surgeon to get a deeper analysis done on my my symptoms and TMJ situation.
    Anonymous 42,789 Replies Flag this Response
  • I too have had several bouts with vertigo, the first happened 12 years ago and at the time I was diagnosed with Menieres disease. My vertigo is always associated with ringing in my ears. In March, I had an attack that lasted 9 1/2 hours and I ended up in the emergency room. My experience sounds very similar to yours, the room starts spinning so fast I cannot even make out the numbers on my clock radio next to my bed. Any movement at all (I mean even if I roll over or lift my arms) causes me to vomit. I continue to vomit several times until the verigo ends. My doctor gave me Mecklizine too (sp?) and valium to get me through the attacks. My attacks are increasing, 4 in the last two weeks. None quite as bad as the one in March but they are steadily getting worse. I am going to another doctor so I am curious what you are diagnosed with. I have been told several times there is not much anyone can do... I need help too.
    Anonymous 42,789 Replies Flag this Response
  • I too have had several bouts with vertigo, the first happened 12 years ago and at the time I was diagnosed with Menieres disease. My vertigo is always associated with ringing in my ears. In March, I had an attack that lasted 9 1/2 hours and I ended up in the emergency room. My experience sounds very similar to yours, the room starts spinning so fast I cannot even make out the numbers on my clock radio next to my bed. Any movement at all (I mean even if I roll over or lift my arms) causes me to vomit. I continue to vomit several times until the verigo ends. My doctor gave me Mecklizine too (sp?) and valium to get me through the attacks. My attacks are increasing, 4 in the last two weeks. None quite as bad as the one in March but they are steadily getting worse. I am going to another doctor so I am curious what you are diagnosed with. I have been told several times there is not much anyone can do... I need help too.Several 3years ago, I had a sever bout of vertigo. The whole world spun, and vomiting came instantly. It lasted 2 1/2 days! I couldn't move my head in any direction without severe spinning and vomiting. My husband called the hospital, and they told him that if I didn't drink anything in the third day, they would have to knock me out for transport to a hospital.I slept, and when awake, vomited. Couldn't even suck on ice for fluid. I still get vertigo spells, but they don't last for days. Doctor told me there was nothing that could be done for it. I have to ride it out. I have a hard time believing that!
    Anonymous 42,789 Replies
    • January 4, 2010
    • 05:05 PM
    • 0
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  • I really sympathise with you. My bouts of vertigo started at 21.The cause was never found until i went to an osteopath who found problems with my neck at50.It really is terrifying and i was frightened of it starting when I had to care 4 my 2 small boys who were only young.For years I was terrified of being alone but now i know the cause I am not as scared.It came on the other day and it still frightens me...I just keep thinking it will go off.It will go off.I can imagine it for you its terrible.
    maz666 19 Replies
    • January 6, 2010
    • 03:20 PM
    • 0
    Flag this Response
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  • HI! I'm new here. I'm the "help, anyone" that you listed in your message. I AM glad to have found a site that helps the many people that have Wrong Diagnosis OR just not getting the help they need. I had AdenoCarcinoma of the Cervix 13 yrs. ago. I was Diagnosed right. My Dad ended up with Pancretitis, he was mis- diagnosed as Acid Relux in 1995! He is still alive today. He had a Pancreatic attack, severe pain! They had to do emergency surgery on him, and over the month he was in I.C.U. they finally took out his Pancreas. He takes Enzyemes everyday! (the pancreas produces 3 enzyemes. Amalyse, Lipase & Protease. These are very important for having our bodies in 'Balance' Digestion & Cleansing(breaking down food and debris). I canceled my surgery of a Radical Hystorectomy, just 5 days before the surgery. I listened to a friend & started seeking out the truth, finding alternatives that support the body. I have seen my dad & mother improve. I improved over along period of time. I tell people: Always trust your "GUT Feelings"! :)Change- is important. If you don't feel well, then what your doing isn't working!We are what we eat! :eek: I heard this enough from others & finally realized that when I had my cancer, my body was pretty well drained from & lacking all the Nutrition! I thought I was eating Healthy but I wasn't. I ate alot of Carbs, Starches & Sugars. I was not getting Meat (Protein) for my heart and my body, Etc. Read the labels & list Daily! ;) How much Sodium. How many Calories. How Much Sugar.How Much Carbs....AM I overworking my Pancreas.....I DID!!! I was Diagnosed as Hypoglycemic.How much Nutrition am I really feeding my Brain, Heart & Internal body. Our body needs food & Nutrition. Just like when a woman is pregnant. The M.D. puts us on Pre-Natal, this is Vital Nutrition for the baby, so the baby doesn't rob from the womans bone, teeth & Internal system! Some woman have their eyes to get worst from being Pregnant! Someone had mentioned Back adjustments. We learned the basic in school about our internal bodies & health. Our Nerves & Communication run from our Head/Brain, down our back and thru out our body. Our bodies, a complicated, piece of Miraculas equipment! We have to be in balance, just like the laws of Nature! If the back is out of alignment it affects us & internally. We feel the effects & the cause, in the form of Pain & Discomforts. If we are not giving our bodies Nutritional Fuel, then even a back alignment will feel good but won't last long or it takes several adjustments to even feel better. Our bodies can Repair & Heal but we have to make sure we are doing positive effects & not being our own, worst enemy. Thyroid, Liver, Kidneys, Heart, Pancreas & Spleen--- all of our Internal system has to be healthy, otherwise we feel the cause from the effects of our bodies taking our daily abuse with our very busy schedules. That's why they take blood test & MRI's, etc. along with many other testing, to figure out what is out of balance inside us and what is showing up in our blood that is now causing us to feel so drained of our energy, loss of sleep & just the fact we know that we don't feel well, the way we used to. Everything has to be in balance to work welll.....even our checkbook has to have balance.....:confused:, if not, we don't feel well, as it has an affect on us for the imbalance -cause. I hope this helps to give you some type of insight & direction to think about. Sincerely,AdenoSurvivor No one has a clue? Help! I thought the following information might be helpful as well: -I've been seeing a chiropractor for the past couple of months for a neck problem I've had for years. She gave me the correct terminology, and I can't think of it just now. It affects the left side of my neck and reduces my range of motion to almost nothing (turning head, etc.) and is severely painful. It has something to do with the vertebrae/joints rubbing together, though I thought it was a pinched nerve, but she said its something that feels that way but isn't.-The vertigo doesn't occur in any relation to chiropractic visits.-I am 22, a business coach, spending most of my day at a desk-I have spent the past several months battling intense fatigue and exhaustion, and a noticeable weight gain. What about a thyroid problem or some sort of blood pressure problem? Is that a possibility for someone my age? I've also been experiencing abdominal pain etc. (my original reason for today's doctor's visit) - seemingly women troubles or something, but I think that would be unrelated. Help? Anyone? Any ideas? I see the doctor today at 3:30....
    AdenoSurvivor 7 Replies
    • January 6, 2010
    • 05:38 PM
    • 0
    Flag this Response
  • Dear Dee, I have suffered with what you are describing for the past 15+ years. I'm 38 now and the episodes started around the time I was15 years old. I would SUDDENDLY find my self on the ground unable to figure out where "up" was to stand up again. Once I was in a position lying down my eyes fixated on a spot or item and I couldn't not move them or I would lose all sense of direction again. I couldn't walk, sit up or move in any manner. This happened while I was driving, working, and at any given time. It got so bad that I did go through extensive testing with various specialists. It was a very long process, but the end result was Endolymphatic Hydrops, sometimes used synonomously with Meniere's disease. It's and inner ear disorder in which the fluid pressre fluctuates causing pressure in the ear, tinnitus or ringing in the ears, hearing loss, vertigo. I was put on a diuretic and a low sodium and sugar diet to cut down on the fluid in the inner ear. Some of the things I TRY to remember to do are drink lots of water, especially while exercising due to the large amount of water lost in your system due to sweating. That is when I experience the most ear pressure and fluctuation. It is also helpful to have medication on hand for episodes of vertigo and nausea. For some strange reason, my problems have significantly improved since having my two children...I have no reason or response to that, but am very greatful! Talk to your doctor about these things and don't be surprised if the term "Hydrops" gives them a puzzled look...It took a lot of discussions to get answers. It is a concern with a small child, but be persistent to get answers and support for your symptoms. For the past couple of months I have been having occasional bouts of very severe vertigo (2-3 times). Each time it lasts from an hour, to several hours. This weekend I had the most severe bout yet. I was sitting on the couch chatting with my fiance, when things started to go kind of wonky around 6pm, like the room was moving, even though I wasn't. It went away for the most part, and I thought everything was all right. I still became a little dizzy every few minutes, but it was mild and faded. An hour later it started to hit me like a ton of bricks. The room was spinning so bad I was scared to walk, and it didn't matter if I was sitting, laying down, or what have you - it was just as intense either way. My fiance had to walk me to the bedroom, because I finally decided I had better lay down, as I was starting to feel nauseous. About 15 minutes later I started to holler for him to bring me a bucket or something just incase I vomited, but he couldn't here me. It was so abd I was in tears and quite scared. I fell off the bed and literally dragged myself to the door because it felt like I was falling even then. He had to put me back into bed. It lasted for several hours, well past midnight, when I finally fell asleep. I couldn't even go to the bathroom by myself, he had to walk me there and hold me upright. It didn't matter what I was doing or what position I was in, it felt like the room was spinning wildly around me, and I could focus on anything, let alone put one foot (or even knee) in front of the other to walk or crawl. I'm going in to see the doctor, but she has brushed off the lesser spells twice before. This spell was the longest lasting yet, and was accompanied by unclear vision (I could see, but felt like it wasn't me looking at what I was looking at, does that make sense?), nausea, but no vomiting (though I wanted to), and a sharp pain in the left side of my head, around the temple, left eye area. It was very scary for me and my fiance. We have a small child, and I'm worried this will happen again when I am home alone with him. Can anyone please help? What is wrong with me? Does this happen to other people, or should I be as worried as I am? Are we overreacting? What should I say to the doctor if she brushes it off again?
    vertigirl 1 Replies
    • February 2, 2010
    • 05:39 PM
    • 0
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  • I dont want to scare you or anything, but it sounds like a stroke symptom. Please check that out soon...
    ckanaan 33 Replies
    • February 3, 2010
    • 04:34 AM
    • 0
    Flag this Response
  • For the past couple of months I have been having occasional bouts of very severe vertigo (2-3 times). Each time it lasts from an hour, to several hours.My father brother and I had similar problems and realized it was just allergies. Mucous was building up in our heads and without decongestants we were all racked with vertigo. Horrible horrible vertigo that lasted for hours and attacks that lasted for days. My brother had an MRI, my father had to call an ambulance for he couldnt get off the floor and was admitted for days. Lately I notice a slight headache, a little spinning or mucous running down my throat and I just take a behind the counter strong decongestant. I personally use an extreme cold and sinus. I have been vertigo free for years but do have to pay attention to certain pollens and spores. Hope this helps.urames@hotmail.com
    Anonymous 42,789 Replies Flag this Response
  • It sounds exactly like my Meniere's Disease symptoms that I have had for a full 20 years now. My father has it as well. Go to an ENT or to a neurologist that is a vertigo specialist. The doctors just give you lots of pills - valium, antivert, etc. None will ever cure you as there is no known cure. Stay on a Strict low-sodium and read about this horrible disease on www.Menieres.com
    Anonymous 42,789 Replies Flag this Response
  • The last 6 years I've battle Temple headaches and vertigo . Mine last 3 to 4 days and never stops, until I've been thou at least 3 whole scibes of antibiotics .. but lately I've been having very noticeable weight gain and seems to me more hair loss than normal after taking my daily shower .... So far no one has any answers for me other then sinus infections and vertigo ..... Thank God for FMLA family medical leave act or I'd be jobless and homeless because when my vertigo kicks in it dosn't let up for several days and I'm completely use less ... Someone help me ... I know there is surgery for vertigo but is the 10% success rate worth the trouble of going thur the surgery ?????
    Anonymous 42,789 Replies
    • October 13, 2010
    • 07:47 PM
    • 0
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  • I started experiencing the same symptoms around the age of 20. I am now 27. I went through lots of tests as I too would find myself on the floor without explanation. For some reason the room would flip upside down and down I would go. The difference is I would have bouts of it and it would go away. Then it would come back and then go away again. So I could have it happen 3 times a week for a month then stop for 6 months. I was diagnosed with MS.Whatever it is, you need to get tested to find out why. I was scared to death to hold my baby afraid I would fall. Get tested and get answers
    YvetteM 20 Replies
    • October 14, 2010
    • 01:31 AM
    • 0
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  • I had it about 10 years ago. Got worse and worse, started at once a month then twice a month ,once a week and then every other day. It was awful, vomit took several days to get back together. I had every test known and they found nothing. I went on a low sodium diet and I had sinus surgery. It stopped and never came back. Worst 6 months of my life I wish it on nobody!It happened twice when driving, thank god I never killed anybody. It was like drunk times 1000. I didn't think the earth could spin that fast.
    Anonymous 42,789 Replies
    • October 14, 2010
    • 10:36 PM
    • 0
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  • I am 40 years old and have never had vertigo in my life, until now. It has been going on for 3 1/2 weeks. I don't have insurance and am unemployed, so I went to the ER. They said I had fluid in my middle ear, but no infection and extreme vertigo. They told me to follow up with an Eye, Ear, Nose and Throat specialist in 3 days. I have not yet done that, due to extremely limited finances. I constantly feel like I am rocking back and forth on a boat. I, too, have had bad nausea and really felt like I wish I could throw up, but can not. It's just dry heaves. My mom is a nurse and thinks it may be Meniere's Disease. It would be wonderful to get some answers, as this condition is very debilitating.I sure hope you feel better soon! I will be praying!For the past couple of months I have been having occasional bouts of very severe vertigo (2-3 times). Each time it lasts from an hour, to several hours.This weekend I had the most severe bout yet. I was sitting on the couch chatting with my fiance, when things started to go kind of wonky around 6pm, like the room was moving, even though I wasn't. It went away for the most part, and I thought everything was all right. I still became a little dizzy every few minutes, but it was mild and faded. An hour later it started to hit me like a ton of bricks. The room was spinning so bad I was scared to walk, and it didn't matter if I was sitting, laying down, or what have you - it was just as intense either way. My fiance had to walk me to the bedroom, because I finally decided I had better lay down, as I was starting to feel nauseous. About 15 minutes later I started to holler for him to bring me a bucket or something just incase I vomited, but he couldn't here me. It was so abd I was in tears and quite scared. I fell off the bed and literally dragged myself to the door because it felt like I was falling even then. He had to put me back into bed. It lasted for several hours, well past midnight, when I finally fell asleep. I couldn't even go to the bathroom by myself, he had to walk me there and hold me upright. It didn't matter what I was doing or what position I was in, it felt like the room was spinning wildly around me, and I could focus on anything, let alone put one foot (or even knee) in front of the other to walk or crawl.I'm going in to see the doctor, but she has brushed off the lesser spells twice before. This spell was the longest lasting yet, and was accompanied by unclear vision (I could see, but felt like it wasn't me looking at what I was looking at, does that make sense?), nausea, but no vomiting (though I wanted to), and a sharp pain in the left side of my head, around the temple, left eye area. It was very scary for me and my fiance. We have a small child, and I'm worried this will happen again when I am home alone with him.Can anyone please help? What is wrong with me? Does this happen to other people, or should I be as worried as I am? Are we overreacting? What should I say to the doctor if she brushes it off again?
    Anonymous 42,789 Replies Flag this Response
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