Discussions By Condition: Nerve conditions

Polyneuropathy and/or Polycythemia Vera

Posted In: Nerve conditions 1 Replies
  • Posted By: Anonymous
  • August 28, 2008
  • 08:43 AM

I was diagnosed with polyneuropathy 3 years ago with symptoms of terrible burning in my left foot, numbness and pins and needles climbing all the way up my legs and arms and finally in my face. Then I started to have a lot of body jerking and spasms all over like if someone was pricking me with a long needdle . Six months later, I was told that I did not have polyneuropathy at all but it was a blood condition called Polycythemia Vera. Immediately the specialist decided to remove 1/2 litres of blood because my platelets were far too high. By the next morning, my foot had completely stopped burning :):):)and I never had that pain again but it did not help at all with the rest of my body. They also put me on 2 hydrea and one cardio aspirin per day. I was checking my blood level regularly and whenever the pins and needles gets too much , I've managed to convince my doctor to remove more blood . It did help although it has never removed those sensations ever. 3 years down the line, it does not seem to work anymore. I am in a lot of pain from burning in my hand and wrist, my face is driving me up the wall.I am so sick of being sick. I just want my face to be normal.
If your feet burn, please at least try this option once just in case it helps you too.

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