Discussions By Condition: Nerve conditions

Hashimoto's encephalopathy- anyone heard of it or with it?

Posted In: Nerve conditions 5 Replies
  • Posted By: anushka
  • July 29, 2009
  • 06:08 PM

I have posted on the autoimmune forum re: history of having headaches for the last 28 years which have incredibly worsened over the last 5 years. We have a positive family history of migraine so all the neurologists i had been to thought this was the sole diagnosis. Three years ago I was discovered to have underactive thyroid with increasingly intractable headaches.
Currently going thru a spell of a daily 10 week headache. Started seeing a new neurologist about 8 weeks ago who after systematic reevaluation of history and examination asked for thyroid antibodies which were high. He started me on high dose prednisone and i am now gaining some relief.
Finally someone is able to tell me that I have a genuine condition and that it is not that i have diff with dealing with life's stressors or anxiety etc. or that i am rebounding or getting withdrawal pain from my analgesics. Everyone was so willing to say that i could not cope or to lump me in the 'unable-to-treat-category' except this new dr. who said every HA has a treatment option, we just have to find it.
I would be so grateful if anyone with a similar story would respond. There were no responses thus far on the autoimmune forum. It would be nice to hear from anyone who may have same condition as this and what treatment progress etc has been like

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