Discussions By Condition: Nerve conditions

21 year old, unable to get diagnosis, now mobility and speech impaired, doublevision

Posted In: Nerve conditions 7 Replies
  • Posted By: Anonymous
  • August 10, 2010
  • 10:43 AM

Hi there,

I have an older brother who is 21 years old, over a year and a half ago (early January 2009) he started experiencing double vision in his eyes, the optometrist didn't know why and put a prism lens on his glasses to correct his site. A few months later he developed a nasty rash on both of his arms, and he started getting tremors in both his arms and legs, gradually not long after his balance was affected and he couldn't walk straight with the need of assistance, his foot would drag on the ground, he had trouble getting up when sitting down and needed help also, his posture was stiff and informal/lazy with an unusual gait. He would always have flem in his throat and excess saliva in his mouth which he always needed to spit out, at night he would have choking fits, because of the stringy thick saliva which has to be sucked or spat out. His personality changed mentally, and he was a different person, he was oversensitive, got upset easily and acted kiddish at some points, he was depressed, paranoid, unmotivated and was very forgetful. His voice and laughter was weak and he started to experience speech impairment, as it was slurred and he soon chose not to speak at all. Also short-term memory loss and also loss a lot of weight. He had trouble urinating and excreting waste. He was always tired and always closed his eyes. Continuously for months his condition got worse and he had to rely on my parents to be feed, changed and bathed. He could walk a little be with a walker-frame if someone was holding him.. but now it has come to a point where he needs to be lifted from one place to another, also the muscles in his hand and feet have tightened causing them to bend inwards and closely grasped.

Originally i had thought it was MS when i did research, all his symptoms matched up to it although the doctors said that in the MRI, his brain did not show signs of this. Then there was other diseases that i looked up such as Stiffman's disease, Parkinson, Alzheimers, etc. I also suspected possibly having small tumours in the brain, which cant be seen through scans, there is definitely something neurologically wrong, something in his brain, nerves that have been dislodged.. that has caused problems in his neuron motor and affected the function and recieptance of messages passed from the brain to the body to move certain parts of his body and to perform normal every day activities. All of his thousands of tests that have been done and sent to America, Australia, UK etc have apparently shown no abnormalities. Including blood and MRI scans...

Doctors in NZ havnt been able to help or diagnose him so PLEASEEEEE, can you help my brother, or refer me to someone who has great knowledge of this kind of illness. It is slowly taking my brothers life as well as my whole family's and I am in desperate need of getting a lead and diagnosis so that my brother could quickly receive treatment and get better. It has been a year and a half too long, and i would appreciate any help that i could get..

Thankyou

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