Discussions By Condition: Muscle conditions

Sever Back Pain/Possible Misdiagnosis, I need Help!

Posted In: Muscle conditions 3 Replies
  • Posted By: Anonymous
  • October 2, 2007
  • 11:54 PM

About 5 years ago I started experiencing back pain, muscle spasm/tightness and stiffness/decreased range of motion. There was no inciting incident that started it all, it just started. The pain has gotten gradually worse. The first doctor told me to change my mattress and after another year finally sent me to PT. That helped while I was there but not after. After changing docs I went on Vicodin eventually reaching 200 per month to relieve the pain. I have tried Myobloc (Botox) injections directly into the trigger points using an EMG machine and have not received much relief. I visit an Acupuncturist once a week and also take herbs he has prescribed. The Neurosurgeon diagnosed me with Fibromyalgia/Myofasial Pain Syndrome. He said is was MPS because it was only in my back. I was then sent to a Pain Mgmt Doctor. He put me on 100mcg Fentanyl patches which help regulate the pain but don't do anything during episodes of breakthrough pain. I also take 2700mg of Neurontin per day and was on Topomax but couldn't handle the side effects. I have taken so many medications over the last 5 1/2 years I can't remember them all. All of my MRIs and EMGs have come back normal. My blood and urine tests also have come back normal. I have not have a pain free day since June 02. Every day I think about how to handle the pain that day and adjust accordingly. Excercise helps but when the pain is too intense I can't do it. The acupuncture helps with the tension and stiffness but not really with the pain for more than maybe a day. To this point the only relief I have gotten is from narcotics. I am 28 and have a baby on the way and am fighting off depression from my disorder...whatever it may be. I can't let the pain beat me, I won't let it. I have to figure out what it is, I just don't think it is Fibromyalgia or MPS. I don't have all the symptoms and it is localized to my Upper Lumbar and Thoracic regions of the back. Does this sound familiar to anyone? Has anyone had this and figured out what it is? Any suggestions? I need them.

Thanks,
Ian

P.S> When I don't take the narcotics the pain is so intense I am bedridden.

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