Discussions By Condition: Muscle conditions

multifocal motor neuropathy

Posted In: Muscle conditions 2 Replies
  • Posted By: Anonymous
  • July 19, 2006
  • 08:20 AM

Hello to all others that suffer from this relatively rare disorder. I was diagnosed with dysimmune type Multifocal motor neuropathy a year ago. It has affected my left arm, which has lost some function, muscle and I have a wrist and finger drop. I am unable to lift my fingers from a flat surface and have lost strength in my arm. I have two days of IVIG treatment every four months and this seems to help. Before my first treatment, I was unable to play the piano. I haven't stopped playing since and I am almost into my 4th treatment. The treatment seems to halt the progression of the disorder and is the only therapy that does not 'suppress' the immune system.
I hope there are some others out there who would like to share their experience in this forum

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