Discussions By Condition: Medical Stories

Too many specialists and too few answers

Posted In: Medical Stories 1 Replies
  • Posted By: Anonymous
  • May 10, 2009
  • 08:54 AM

Hi, to be brief, over the past 2 years I started to experience heart palpiations, and horrible nausea, light headedness and passed out twice. I was found to have two medium blockages to the heart, just below the threshold of having surgery and my meds were changed with good effect as the palpitations stopped. I have lost all the hair on my legs and was pretty hairy, have restless leg syndrome, edema of the feet and claves and at times a numbness in my foot-for 2 yrs the rt side now the left. At some points due to the near syncope, I would go in the e.r. and they did endless scans. My eeg's are described as slow and disorganized, one brain stem evoked pot. test was abnormal, as well as the visual evoked pot. My CT/MRI indicate a tiny Lacunar Defect of the Caudate Nucleus, and some deep periventricular problems but not large and passed off due to aging (52), I am now numb in my left hand, often feel like I am walking on sponge and nausea is nightly I about late afternoon. I have a weak urine flow but may be age as psa's are normal. My spinal tap showed high protein and IGg but no bands. They ruled out M.S. and ALS etc. I now for the past two weeks have been running fevers nightly. I am HIV neg and STD neg and Lyme Neg. I dread each day- any ideas? The neurologist is stumped. P.S. small benign node in rt lung thought to be benign due to no other signs of cancer-pet scan from neck to waiste was neg. for cancer. Sister died of neuroedocrine carcinoma, parents both had colon cancer and many strokes. I have high pb and col. which are controlled but were not for many years. I would love any feedback.

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