Discussions By Condition: Medical Stories

Histoplasmosis,scopulariopsis,congenital lymphocytopenia

Posted In: Medical Stories 5 Replies
  • Posted By: dougsgirl63
  • August 15, 2007
  • 09:22 PM

I will try to make my long complicated story short as possible.

It all began three yrs ago when i got an Ecoli Bacterial Infection in my left kidney. I was hospitalized for that till it was clear. The following year, which was a year ago in April, I got another Ecoli puss pocket in my left ovary. It ruptured and nearly killed me, as it shot poison all through my internal organs. They never figured out why or how it could have gotten there.

Eight months ago I began to get lesions on my skin, many lesions. Through 3 biopsies, and a bunch of doctors from Harvard looking at them, and from the cultures and the stains they said it was histoplamosis that I now have. I have been on sporanox now for 8 months. Now I am developing calcification of my Thymus and it is sitting close to my heart.

My Iinfectious Disease doctor thought i had HIV but after doing several, and I mean several test, we learned that I do not in fact have HIV but Congenital Lymphocytopenia. It was an absolute lymphocytes on my results. I am being tested every two weeks, for the past 6 -7 months, for this and to test my liver because of the Sporanox I am taking.

Can you help me? My doctors here in Illinois are clueless as to how to help me. My internal meds doctor is now saying that the doctors at Harvard are wrong and he has personally diagnosed me with Scopulariopsis, since I also have the skin lesions. With my calcifying of the lymph nodes another doctor has told me it is disseminated Histoplasmosis. I am so confused but they are all telling me it is brought on my the congenital lymphocytopenia.

Is there any help for me? I am now beginning to suffer neurological problems. Last Saturday new things began to happen. My pupils are now like pin points, I am severely dizzy and have been throwing up. I describe it like being on a merry go round trying to pick something up with it going round and round and round.

Please can you help me, as all this is suppose to be brought on by the congenital lymphocytopenia. The Histoplasmosis,all of it plus i also have cancer of the vulva. They called it a year or more ago but do not know how far that has gone do to all this other i am dealing with i have not had it checked. They say i am catching ALL of this do to my defective immune system. Is there any hope?

Please write back to me,


Thank you for listening,
Elizabeth Winstead
in Illinois

Reply Flag this Discussion

5 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.