Discussions By Condition: Medical Errors

Too Late Now.....I have a Large Uterine Fibroid

Posted In: Medical Errors 42 Replies
  • Posted By: annsky67
  • November 10, 2006
  • 05:45 AM

In retrospect, my diagnosis should have long been overdue. It has been delayed because of the doctors who told me I was just having a case of acid reflux and hemorrhoids. I first experienced abdominal cramping in 2002, the Doc prescribed me Nexium to deal with my pain. I have consulted with him for quite some time until I moved to another State and the docs that time were cynical of my symptoms, almost indifferent... just adviced me to go home, (suck it up) and take some antacids and stomach relief medications. They never ordered tests or studies to be done. Why/ Because they thought it was a case of GERD for me or whatever....:(
After several months, my female family practicioner ordered a pap smear but it was negative. I think a colonoscopy followed which also yielded negative results but the docs discovered hemorrhoids so they thought that was causing my problem and GERD...or was it?:eek: In April 2005, I noticed my bleeding was really heavy. I consulted the new Doc about the underlying cause of my heavy periods and he assured me that it was just normal because I was close to the peremenopausal stage. (at 39 yrs). At this point, he ordered a pap smear but since it was negative, he called me over the phone and suggested a hysterectomy. I thought to myself, why would he order that when no one even an OB did not diagnose me? For me, that kind of operation was too soon and too abrupt. Besides, my husband and I planned to have a child together. Since my period never ceased to be unusually heavy and bothersome, I saw that Doc again....:mad: On my visit, Dr.wasn’t around so they designated me with another male doc. The substitute doctor this time suggested that I take birth control pills to stop the bleeding. He reasoned “ that tests cannot be done when I am bleeding ”. I took it once but I was compounded with a severe headache and more pain so I stopped. When I couldn’t bear my heavy periods any longer, I sought the help of a female doc, I though that she can understand my situation better. I complained to her about my abdominal pain and heavy periods. She asked one of the OBs in the hospital to assist her in doing like a “biopsy test” on me. The OB explained that they hope that my heavy bleeding is not a sign of cancer. After a week, the OB called and informed that my biopsy was negative and that I should see the same doc again . They said I did not have cancer and so it was good. On my vacation here in CA, I was stunned after being told in the ER that I had an enlarged uterus with a mass/fibroid (18 cms). The OB Gynecologist even remarked Im like 3 months pregnant because my uterus is so enlarged and big like it swelled up...... Also, I have cysts now in my ovaries. These findings were seen following a transvaginal sonogram and utlrasound...This month I am scheduled to have a total hysterectomy...IS THIS A CASE OF JUST PLAIN BAD LUCK WITH DOCS OR WAS I MISDIAGNOSED????CAN I FILE FOR A MEDICAL NEGLIGENCE WITH THE DOCTORS WHO IGNORED MY COMPLAINTS...???

Reply Flag this Discussion

42 Replies:

  • Please don't jump into surgery there are natural things you can do to avoid uterus removal. You need to find out (many 2nd opinions) if you can have the mass removed and not the whole shabang! I don't know why Dr.s are so "trigger happy" to remove uterus. Find out if it is poss. to remover tumor (not "If they will" but "if it can be done"). They may act like your ridiculous! Natural solutions may help to shrink it to a removeable size, internet is loaded with info on herbs and foods and a diet change!!!! In case you did'nt know, when you give the body what it needs, and not garbage, it can do a miracle in healing itself in even the worst scenarios.
    Anonymous 42,789 Replies
    • December 5, 2006
    • 07:35 AM
    • 0
    Flag this Response
  • If so, yank it out!!;) But seriously, you can only sue if you have irreversible damage. I looked into it after I had acute pancreatitis twice because of a misdiagnosed gallbladder problem. Now, if I get pancreatic cancer and can prove that it was triggered because of the gallbladder problem, theeennnn I can sue. Janeps. But really...Yank that baby out!!! Are you kidding me? :rolleyes: J
    almostanurse 7 Replies
    • December 10, 2006
    • 04:15 AM
    • 0
    Flag this Response
  • Please go to a female gynocologist and get another opinion. My male gyno. told me I had massive fibroids and would never get pregnant after trying for 6 years. He wanted to do an immediate hysterectomy and said I was in grave danger of hemmorage. I was 38 and childless. I am a nurse and decided to do a basal metabolism test to see when I ovulated. To my surprise, it showed I was ovulating during the last 3 days of my period! I immediately became pregnant and had a normal pregnancy. He told me it was a miracle and that he must remove the uterus now because the fibroids were growing faster. I refused and 14 months later had another son! A year after that, I went to a female gyno. and she told me I had no fibroids at all! Yes, it could be possible that you are in need of a hysterectomy, but get a second or third opinion from a female gyno first! Good luck.
    Anonymous 42,789 Replies
    • December 10, 2006
    • 01:12 PM
    • 0
    Flag this Response
  • I would not have my uterus removed. I'm an RN and I'm so sick of quick fixes. I hate watching women having there female organs yanked out for situations that don't warrant removal. Uterine fibroids can shrink, fibroids feed and become larger from estrogens. Read Dr. John Lee's book. You will be so suprised how you can take control of your health. Don't let the western medical system dictate your care get the facts! Our uterus and ovaries are important to our health even if we have had all the children we want, etc.I was 39 having very heavy periods found out I had fibroids and my doctor at the time wanted my to have a hysterectomy. Instead I made changes in my diet/lifetstyle and learned that taking care of your health is not about removing organs or taking prescribed meds. With my lifestyle changes my fibroid has shrunk and is not detectable. I have no more pms, normal regular periods and feel great! I wonder what I would feel like if I had had a hysterectomy!
    Anonymous 42,789 Replies
    • December 13, 2006
    • 07:07 AM
    • 0
    Flag this Response
  • Listen to what people are telling you!!! Always seek a 2nd, 3rd and maybe even a 4th opinion when it comes to removing parts of you. There are many things YOU can do to help shrink these fibroids and cysts. I am a student at an Acupuncture School and along with our student clinic- we have a professional clinic too. There is a Female Dr. there from China and (GYN) is her specialty. She has many years experience and many success stories!!! People come to her from far away to get treatments and her herbal remedies. ALWAYS KEEP YOUR OPTIONS AND YOUR MIND OPEN!!! It is YOUR BODY and YOU should be in charge of WHAT GOES IN IT and WHAT COMES OUT OF IT!!! Red Clover is one of the herbs that comes to mind that assists in shrinking tumors. Watch your own NEGATIVE THINKING too because as a Massage Therapist of 14 years, I can tell you YOUR MIND INFLUENCES YOUR BODY on many levels seen and unseen. Detox your body, drink alot of water, get massages, acupuncture (for GYN) and for stress reduction (so your body can get into a healing mode). Focus on what you want and release what you don't. Best of Luck~ ;) :o
    1111healer 106 Replies
    • December 28, 2006
    • 00:00 AM
    • 0
    Flag this Response
  • Hi there. Sounds like a familiar problem. It took over 3 years for the medical profession to diagnose my fibroid! I eventually had to pay for a private MRI scan to put my mind at rest and find out what was wrong with me. It wasn't all in the mind! My gnaecologist on seeing the scan results, reacted by saying it was a fast growing fibroid and had to be removed as soon as possible "Just in case". Needless to say I wasn't happy and asked about embolisation. I did not want a full hysterectomy. I was referred to a specialist who said the fibroid was treatable by this method but was not prepared to go against my gnaecologist's recommendations. It was a question of watch and wait and put up with the symptoms. It hasn't been easy; I spent a lot of time reading up on various outcomes of surgery and came to the conclusion that a lot of the time it doesn't cure all the problems.(I had urinary frequency as well as heavy bleeding amd abdominal cramping.)Anyway, I contracted a UTI and was in absolute agony. Apparantly quite common with large fibroids. For weeks I wasn't right and asked for a second opinion regarding surgery. It was the best thing I did. This guy was great. Did tests to check there was no cancerous endometrial lining etc. and generally put my mind to rest. His attitude was totally different and he didn't see any need for a hysterectomy unless I felt my symptoms were unbearable.I've changed my diet slightly and cut right back on alcohol because of the extra eostrogen levels. Things appear to be on the up, I feel a lot better, but then I am older at 51. The menopause has got to be near and the fibroid will hopefully start reducing (it hadn't at last exam, but it also hadn't grown in 12 months).I would advise looking at embolisation as an option or even myomectomy. You will need a sympathetic surgeon who understands you want more children. There are plenty of good websites to get further info. Please don't be badgered into an operation you don't want. Good Luck.Terri UK
    Anonymous 42,789 Replies
    • January 3, 2007
    • 00:30 PM
    • 0
    Flag this Response
  • Hold off on that hysterectomy! I had mine removed because of cystic ovaries and have regretted it ever since. Did you know that a certain number of women who have this operation subsequently have prolapse problems? I had a cyctocele (bladder dropping out of the vagina), a rectocele ( rectom doing the same) and tried to get by without the operation by using a pessary to hold my organs up. Not good enough! Now the vaginal vault is coming down and I am due for a major operation as well as having the hysterectomy. I know now I should never have had it. Please check out your problem with the women on the prolapse boards. Good luck.CJ
    Anonymous 42,789 Replies
    • January 5, 2007
    • 03:19 AM
    • 0
    Flag this Response
  • Hello,Do not have your uterus removed... There are many alternatives to curb the cramps and the heavy bleeding caused by fibroids. Organic Red Raspberry leaf is very helpful as well as Sherpherd's Purse. You can take them as tea or tincture, check a health food store for them. You may also take one tablespoons of blackstrap molasses with warm water or juice to build up your blood. Added to that, do you best to reduce stress, eat a balanced diet and pray. This is what I do to help myself and it works. Try to do some research and find something that works for you. It is not too late, the bleeding can be controlled. You don't have to go under the knife...Moreover, I have suffered from acid reflux for years, and a good alternative is either Hydrochloride Betaine or Apple cider vinegar in warm water... The effect is immediate. Check earthclinic.com for home remedies that work.Wish you the best and stay healthy!M
    Anonymous 42,789 Replies Flag this Response
  • I just recently started a detox and to my surprise, without even knowing, my period is so light. I usually go about 7 days, and an entire package of pads. However, this time i have used maybe 5 or 6 pads, and my period is much much lighter. I had 7 fibroids after I had my child, but now only 1 remains, which was the biggest one. I have no doubt that if I were to continue detoxing periodically and looking into a better way of eating the last one will go away too. Don't do it, especially if you haven't had the joy of birthing a child. Be blessed.
    Anonymous 42,789 Replies
    • October 23, 2007
    • 11:19 PM
    • 0
    Flag this Response
  • My symptoms were different but the recommended treatment was the same. I was advised to have a complete hysterectomy, at the time of surgery they found that the mass which we thought was an endometrea was actually cancer. (angiosarco, it turned out in the end)Never quit looking for answers. For me surgery was the right choice. Becuase I kept pushing for answers I have a better chance of survival than if things had continued. Had I chosen otherwise, and there were lots of people telling me what they thought I should, I would still be in incredable pain and that thing woulld still be growing inside me.
    roseasharn 15 Replies
    • November 11, 2007
    • 10:30 PM
    • 0
    Flag this Response
  • In retrospect, my diagnosis should have long been overdue. It has been delayed because of the doctors who told me I was just having a case of acid reflux and hemorrhoids. I first experienced abdominal cramping in 2002, the Doc prescribed me Nexium to deal with my pain. I have consulted with him for quite some time until I moved to another State and the docs that time were cynical of my symptoms, almost indifferent... just adviced me to go home, (suck it up) and take some antacids and stomach relief medications. They never ordered tests or studies to be done. Why/ Because they thought it was a case of GERD for me or whatever....:( After several months, my female family practicioner ordered a pap smear but it was negative. I think a colonoscopy followed which also yielded negative results but the docs discovered hemorrhoids so they thought that was causing my problem and GERD...or was it?:eek: In April 2005, I noticed my bleeding was really heavy. I consulted the new Doc about the underlying cause of my heavy periods and he assured me that it was just normal because I was close to the peremenopausal stage. (at 39 yrs). At this point, he ordered a pap smear but since it was negative, he called me over the phone and suggested a hysterectomy. I thought to myself, why would he order that when no one even an OB did not diagnose me? For me, that kind of operation was too soon and too abrupt. Besides, my husband and I planned to have a child together. Since my period never ceased to be unusually heavy and bothersome, I saw that Doc again....:mad: On my visit, Dr.wasn’t around so they designated me with another male doc. The substitute doctor this time suggested that I take birth control pills to stop the bleeding. He reasoned “ that tests cannot be done when I am bleeding ”. I took it once but I was compounded with a severe headache and more pain so I stopped. When I couldn’t bear my heavy periods any longer, I sought the help of a female doc, I though that she can understand my situation better. I complained to her about my abdominal pain and heavy periods. She asked one of the OBs in the hospital to assist her in doing like a “biopsy test” on me. The OB explained that they hope that my heavy bleeding is not a sign of cancer. After a week, the OB called and informed that my biopsy was negative and that I should see the same doc again . They said I did not have cancer and so it was good. On my vacation here in CA, I was stunned after being told in the ER that I had an enlarged uterus with a mass/fibroid (18 cms). The OB Gynecologist even remarked Im like 3 months pregnant because my uterus is so enlarged and big like it swelled up...... Also, I have cysts now in my ovaries. These findings were seen following a transvaginal sonogram and utlrasound...This month I am scheduled to have a total hysterectomy...IS THIS A CASE OF JUST PLAIN BAD LUCK WITH DOCS OR WAS I MISDIAGNOSED????CAN I FILE FOR A MEDICAL NEGLIGENCE WITH THE DOCTORS WHO IGNORED MY COMPLAINTS...??? Your doctors completely missed the boat here, and IMO are liable for it. They should have gotten you an ultrasound at the first sign of pain and abnormal bleeding. Perimenopausal symptoms at the age of 39 - PLEASE!! That is crap:eek: . 18cm is very large, and if they can remove it without the total hysterectomy I would do that. How large are your ovarian cysts? Are they actually IN the ovaries, or adjacent to them? This is a huge difference, and hard to always spot on the ultrasound. Hope you avoid a full hysterectomy, and follow some of the advice listed above. Best wishesDOM
    acuann 3,080 Replies
    • November 20, 2007
    • 08:35 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Your doctors completely missed the boat here, and IMO are liable for it. They should have gotten you an ultrasound at the first sign of pain and abnormal bleeding. Perimenopausal symptoms at the age of 39 - PLEASE!! That is crap:eek: . 18cm is very large, and if they can remove it without the total hysterectomy I would do that. How large are your ovarian cysts? Are they actually IN the ovaries, or adjacent to them? This is a huge difference, and hard to always spot on the ultrasound. Hope you avoid a full hysterectomy, and follow some of the advice listed above. Best wishesDOM It's a probably a fibroid / leiomyoma. In that case it is benign. There is no malpractice case, if this is what you seek. The leiomyoma had been growing there for many years. Even if they would have found it right away by ultrasound, how would your options have changed? Not at all. It would not bhave been detected by a pap smear or endometrial biopsy. A pap smear will find cervical cancer, and on rare occasions, endometrial or ovarian cancer. An endometrial biopsy will sample the lining of the uterus, but may miss tumors of the muscular wall of the uterus. A leiomyoma (fibroid) is a tumor of the muscular wall, and would not be detected. In some cases of very large fibroids, the doctor can feel the mass on pelvic exam. Most of the time they don't. They ordinarily do not do ultrasounds until later. There was no mismanagement at all in your case. Almost all fibroids are found in exactly the manner you have described. A total hysterectomy is needed if you want the bleeding to stop, and also to check if there is a malignant tumor such as a leiomyosarcoma or endometrial stromal sarcoma in the wall of the uterus. Sometimes leiomyomas can be shrunken by blocking the arteries to the leiomyoma, but this is not commonly done. If the leiomyoma is predominantly sticking outwards away from the inside of the uterus, it can be resected, leaving the rest of the uterus. All the conditions have to be right for this to be an option. i am sorry that you had the misfortune of developing a fibroid at a time when childbearing is still your desire. I hope that the options are available to you that I have mentioned.
    A pathologist 12 Replies
    • November 21, 2007
    • 08:02 PM
    • 0
    Flag this Response
  • Your doctors completely missed the boat here, and IMO are liable for it. They should have gotten you an ultrasound at the first sign of pain and abnormal bleeding. Perimenopausal symptoms at the age of 39 - PLEASE!! That is crap:eek: . 18cm is very large, and if they can remove it without the total hysterectomy I would do that. How large are your ovarian cysts? Are they actually IN the ovaries, or adjacent to them? This is a huge difference, and hard to always spot on the ultrasound. Hope you avoid a full hysterectomy, and follow some of the advice listed above. Best wishesDOM It's a probably a fibroid / leiomyoma. In that case it is benign. There is no malpractice case, if this is what you seek. The leiomyoma had been growing there for many years. Even if they would have found it right away by ultrasound, how would your options have changed? Not at all. It would not bhave been detected by a pap smear or endometrial biopsy. A pap smear will find cervical cancer, and on rare occasions, endometrial or ovarian cancer. An endometrial biopsy will sample the lining of the uterus, but may miss tumors of the muscular wall of the uterus. A leiomyoma (fibroid) is a tumor of the muscular wall, and would not be detected. In some cases of very large fibroids, the doctor can feel the mass on pelvic exam. Most of the time they don't. They ordinarily do not do ultrasounds until later. There was no mismanagement at all in your case. Almost all fibroids are found in exactly the manner you have described. A total hysterectomy is needed if you want the bleeding to stop, and also to check if there is a malignant tumor such as a leiomyosarcoma or endometrial stromal sarcoma in the wall of the uterus. Sometimes leiomyomas can be shrunken by blocking the arteries to the leiomyoma, but this is not commonly done. If the leiomyoma is predominantly sticking outwards away from the inside of the uterus, it can be resected, leaving the rest of the uterus. All the conditions have to be right for this to be an option. i am sorry that you had the misfortune of developing a fibroid at a time when childbearing is still your desire. I hope that the options are available to you that I have mentioned.
    A pathologist 12 Replies
    • November 21, 2007
    • 08:03 PM
    • 0
    Flag this Response
  • Even had they have told you that you had a fibroid, the result would most likely have been the same. More often than not, fibroids are left alone. I have seen (MANY MANY times) that even when a woman with fibroids undergoes a c-section, her fibroids are left in place.
    SweetNurse 3 Replies
    • December 6, 2007
    • 08:11 PM
    • 0
    Flag this Response
  • DO NOT HAVE A HYSTERECTOMY!!! PLEASE DO NOT!!! I had one several years ago due to fibroids and was not given anyother options. I have regretted it ever since. I have never feltworse in my life!!! Do whatever you can to find other treatments. If I do anything for the rest of my life; it will be to get the word outto women to NOT have this horrific, life changing surgery done.I know, first hand, how awful it can be afterwards. JUST don'tDO IT!!!!!!! Good Luck, and keep tough about this!
    IndyShine 7 Replies
    • January 2, 2008
    • 11:16 AM
    • 0
    Flag this Response
  • A myoectomy might be a good choice here. However make sure what the mass actually is before you dismiss the choice of having a hysterectomy. Mine was a highly aggressive cancer, we now believe from the broad ligament. Without my hysterectomy it would grow back and it would metastasize and eventually kill me. Because of my hysterectomy I have a chance at survival. I currently feel great, no pain or discomfort other then slight side affects from the radiation I am currently undergoing. Before the surgery I literally wanted to die,I just had not figured out a way to do it that wasn't messy or painful.Much of the advise I was given be well meaning people, in real life and on the net, was not only wrong, but if taken, would have adversely affected my chance of beating this.Make sure you get all the information you need to make your decisions.
    roseasharn 15 Replies
    • January 2, 2008
    • 03:59 PM
    • 0
    Flag this Response
  • Hold off on that hysterectomy! I had mine removed because of cystic ovaries and have regretted it ever since. Did you know that a certain number of women who have this operation subsequently have prolapse problems? I had a cyctocele (bladder dropping out of the vagina), a rectocele ( rectom doing the same) and tried to get by without the operation by using a pessary to hold my organs up. Not good enough! Now the vaginal vault is coming down and I am due for a major operation as well as having the hysterectomy. I know now I should never have had it. Please check out your problem with the women on the prolapse boards. Good luck. CJ Hello,You wrote this quite some time ago, but if you read this, could youlet me know how you are doing? I would also like to know whereyou might recommend to go (websites, etc.) on what to do aftera hysterectomy with complications? I have never felt worse. Ihave gone to several doctors, and two are trying to pass it offas Fibromyalgia. I know there is something physically wrong,and think I could have some kind of leakage which is causingme to feel fluish all the time and fatigued. Also when I bendover, my back hurts. Would appreciate any advice/help, where to go to get moreinformation. Thank you.
    IndyShine 7 Replies
    • January 3, 2008
    • 05:16 AM
    • 0
    Flag this Response
  • Hello,You wrote this quite some time ago, but if you read this, could youlet me know how you are doing? I would also like to know whereyou might recommend to go (websites, etc.) on what to do aftera hysterectomy with complications? I have never felt worse. Ihave gone to several doctors, and two are trying to pass it offas Fibromyalgia. I know there is something physically wrong,and think I could have some kind of leakage which is causingme to feel fluish all the time and fatigued. Also when I bendover, my back hurts.Would appreciate any advice/help, where to go to get moreinformation.Thank you. Please try acupuncture and Chinese Medicine to help you. I have treated many women who have had problems after hysterectomies. Acupuncture and Chinese herbs have really helped them! Best wishesDOM
    acuann 3,080 Replies
    • January 3, 2008
    • 05:22 AM
    • 0
    Flag this Response
  • Hello, Thank you for your reply. I have already tried this.It did not help. It really is physical with some typeof leakage or adhesions or prolapse. I just wouldlike to know any other advice (please understandI do appreciate your help).
    IndyShine 7 Replies
    • January 3, 2008
    • 07:23 AM
    • 0
    Flag this Response
  • Indyshine,How is your digestion - do you have gas and bloating after you eat? Any problems with either constipation, diarrhea, loose stools? How is your urination? Do you have any abnormal vaginal discharge? I am sorry you weren't helped by acupuncture - did you go for several treatments and were you prescribed herbs? IMO Chinese Herbal therapy is at least if not more important than acupuncture for women's disorders. You would need to find a NCCAOM certified practitioner who specializes in Chinese herbology - many don't. Best wishesDOM
    acuann 3,080 Replies
    • January 3, 2008
    • 06:56 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement