Discussions By Condition: Medical Errors

child with multiple problems

Posted In: Medical Errors 38 Replies
  • Posted By: Anonymous
  • May 25, 2007
  • 04:11 PM

My 8 year old grandson has had a difficult life and many medical and emotional issues. He lives with me. I have only just gained permanent guardianship of him, though I've been his primary caregiver most of his life. Anyway, he has psychiatric diagnoses of ADHD, oppositional defiance, and probably reactive attachment disorder. He also has chronic constipation and abdominal pain, which has been labeled psychosomatic, after multiple endoscopies. He has had problems with urinary frequency for the past couple of years, which the urologist says is probably due to the chronic constipation and stress, as he can find no physical cause. He did have undescended testicles and a too-small urethra, which were corrected when he was 3 years old.
I am writing this to get any opinions on a possible physical or emotional cause for "atypical asthma" symptoms and chronic upper respiratory infections. He has had respiratory problems for several years and has been seeing a pulmonologist, who says his asthma is not due to allergies or poor immune symptom. He has had problems with constant runny or stuffy nose (rhinitis) so was referred to an ENT recently, who did several sinus MRIs and said his frontal sinuses were never draining. He had his tonsils and adenoids taken out to facilitate drainage, which did work. His frontal sinuses are now draining. However, he still has the same problem with chronic rhinitis and constant throat clearing. The pulcomologist is now going to test him for cystic fibrosis but he doesn't really feel that he has that. If not, he is going to suggest a bronchoscopy to rule out other causes.
My grandson takes multiple medications - Metadate for ADHD, Prilosec for abdominal pain, Myrolax for constipation, Zyrtec, Singulair, Sudafed PE (OTC), Flonase, Flovent. When he's having episodes of respiratory problems the Flovent dosage is increased and we add nebulizers with Xeponex and Iapatropium. He is often also put on antibiotics due to frequent ear infections, bronchitis, sinus infections, etc.
He is also obese. He is 4 feet tall and weighs 86 pounds. He very rarely gets sugar, but he has a big appetite, which I have trouble controlling. His emotional problems cause him to feel that I am "just being mean and don't care" when I tell him he has had enough to eat and is still complaining of hunger. I stick to my guns, but I need to cut him off sooner, I think. This is very difficult with his insatiable appetite. I think he eats to make himself feel better, as I think that he suffers from chronic depression. By the way, he is seeing a therapist(s) for several years now. However, his therapist keeps changing because he is on Medicaid and as soon as one therapist starts to make progress with him and he shows a little improvement, he is considered to no longer need therapy and is taken off. I then have to fight for several weeks or months to get him back on and it is never the same therapist. Therefore, he has to keep re-establishing a therapeutic relationship with each one. He has reached the point that he's getting little out of therapy because he has a hard time trusting that he will continue to see the therapist and so doesn't want to give his trust to any one of them (wonder why!?).
I know I've mentioned a lot here, but any suggestions on any of the above problems would be appreciated.
He misses a lot of school due to all of the above problems.
Thanks from Grandma at the end of her rope.

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