Really could use some input

Really could use some input

Posted In: 9 Replies
  • Posted By: nysblondie
  • October 18, 2007
  • 06:50 PM

I am a 39 yr old woman that has generally been healthy most my life, over the last several years I seem to be adding to the list of symptoms though and am getting more and more frustrated with no doctor finding out what is wrong.
Fatigue is probably the first and major symptom, then came extreme joint pain (got tested for RA) wasn't that, also was treated for depression for years, then tested for sleep apnea wasn't that. Then I developed stomache problems, put on Nexium.
I finally did have a complete blood work panel done and was told my ANA "titer"? sorry not sure about terms was "off". I have the skin sores on my arms and face (no butterfly) just sores like many have spoken of and have also developed a sunsitivity to sun, which I used to love to be in and now I can't stand 5 mins in it. The sore also seem worse in the summer. I have head aches and my concentration level is diminishing as well.
I had heard everything from I am depressed to SAD to it is all in my head and my doctor even wanted to just put me on monthly penicillian treatments for a year to see what happened.

I seem to have been tested for just about everything from MS, sleep disorders, Arthritis, and nothing. Some days I am so exhausted I can not do anything (even shower), oh I also have cold hands and feet and stiffness (mostly in the morning and then sometimes again late at night.

I feel physically and mentally drained and would really just like to finally find out what is wrong with me. I would appreciate any comments or suggestions. I have had quite a few people tell me it is lupus and to just keep trying Doctors, but now I am out of work because of the pain and feeling drained and I am really tired of feeling like no doctor will listen to me or that I am "sick in the head."

Please anyone!

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