Discussions By Condition: Liver conditions

last stage liver failure

Posted In: Liver conditions 22 Replies
  • Posted By: Anonymous
  • March 21, 2006
  • 03:38 AM

Hello,
I am just trying to find some information on how long a person can live with last stages of liver failure,my brother who is only 41 years old had to be put into a nursing home due to liver failure,some days he seems to being doing better and other days he just wants to sleep,he has been in nursing home for 3 weeks now and I just would like a little information from someone that has been through this before,is there any chance that he can live for a year or so without a transplant? Or are just talking about a few months? Any insight would really help me out...thanks for your time!
Sandy

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22 Replies:

  • Wow. I have been searching the internet to find the same answer to the question you just asked. It sure isn't very comforting to hear someone else ask the question, and not have any answers. My mom has metatsatic liver failure (from breast cancer) and her story is too long to tell. I will sum it up by saying they have stopped all treatment and we are just waiting for the liver to completely fail. She lives at home with us and is more stubborn than anyone I've ever seen, so we've been going through something awful. Sadly enough, things have gotten to the point that I am ready for her to go...for the good of us all - including her. If anyone knows of any studies that have been done on this question, please let us know. Her doctor said it could be a few weeks and I did read somewhere today that once all of the signs start to show up (fatigue, loss of appetite, weight loss, confusion, itching, twitches/tremors/seizures, and jaundice) that there's only about 2-3 weeks left until they will slip into a coma and eventually death. My confusion on this issue is that she has everything except for the jaundice, but I've also heard that not everyone gets jaundice. Wow - what a long post - sorry. Anyway, if anyone else has some research, or examples, or comments, that would be very helpful.
    Anonymous 42,789 Replies Flag this Response
  • Hello, Sorry to hear about your mother,I have yet to really find out any answers to our questions but I have found a Great site for you to visit, it's all about and for people with liver failure,it's a forum....hope you can find some answers here, type in www.forums.delphiforums.com and put liver failure in the search on top left hand side of page....good luck..........Sandy
    Anonymous 42,789 Replies Flag this Response
  • Hello, My father in law has it and the doctor gave him a week to a month and now its been about 3 or so week and I think he may have a week left from liver failure and i am not just going by the doctor. I was lucky to get him on HOSPICE which pays for all his medications hospital bed, walkers, pretty much anything he needs to go comfortably. But they have given me a blue book called when I am gone andf it states the diffent stages of death and what symptoms to look for and in what time frame you are kinda of looking at! to anyone having theese problems I highly suggest to check out hospice they have really done just so much for me. They have a couple nurses that come out everyweek a social worker and even helpers when you need them. Check out this web site its hospicenet.org and for some info on stages try hospicenet.org/html/preparing_for.html Hope this helps evey one out there in need of some answers. yuo can e-mail me at pantherfairy@sbcglobal.net I know how tough it is to watch a person you love die
    Anonymous 42,789 Replies Flag this Response
  • I've been trying to get and stay informed re: liver failure for 3 years now. My estranged husband has had NO liver function for 8-9 months(!) but has started a rapid decline in the last month sort of centered on dropping blood pressure and weakness, clumsiness and in and out of confusion. If your mother hasn't always been so stubborn, it may have to do with ascites (nasty toxic juice that builds up in the body and brain that is full of the sewage the liver might have routed out of the body. Who knows what might result from the pressure/"infection"/chemistry in the brain? And it comes and goes.
    Anonymous 42,789 Replies Flag this Response
  • In the last stage of liver failure many things play a roll on the time one may have. My mom just passed away Saturday and she to had liver failure. Her condition was fast she had acities for 2 months and they would remove the fluid she went in the hospital from ammoina level being 69 which is high and then her kidney funtion went to 20 percent then 10 the next day. She had no chance and passed away I was told it depends on one condition on the time as stated there are many thing that play a roll on the life of one whohas liver failure. We were unaware this would be so quick. Mom had the disease for 20yrs with hope for a tranplant this never came about. Good luck to all just stay on the doctors about everything regarding your love one ill.
    Anonymous 42,789 Replies
    • August 28, 2008
    • 07:55 AM
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  • my dad who is 60 & a heavy drinker has just come out of hospital after being drained. he was diagnosed with cirhosis & has been told he has 2 months left to live even if his drinking stops. we live 60 miles apart & has no one but me to care for him. part of me thinks that its total rubbish & scare mongering him into giving up but the other part is too painful to think about as it means total heartbreak. so here i am trying to find out the harsh realty of his diagnosis. any answers?????
    Anonymous 42,789 Replies
    • September 16, 2008
    • 11:35 PM
    • 0
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  • my dad who is 60 & a heavy drinker has just come out of hospital after being drained. he was diagnosed with cirhosis & has been told he has 2 months left to live even if his drinking stops. we live 60 miles apart & has no one but me to care for him. part of me thinks that its total rubbish & scare mongering him into giving up but the other part is too painful to think about as it means total heartbreak. so here i am trying to find out the harsh realty of his diagnosis. any answers?????Who told you 2 month as my mums being in and out since jan,in jan i was told she was hanging on by a thread and now shes still here.She is however in and out off hospitol every week with swelling and fluid on the brain but we still cant get answers they just drain the fluid and let her out then shes back in within days.Id love answers but just cant seem to get any.
    Anonymous 42,789 Replies
    • September 2, 2009
    • 06:51 PM
    • 0
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  • Hello, I am just trying to find some information on how long a person can live with last stages of liver failure,my brother who is only 41 years old had to be put into a nursing home due to liver failure,some days he seems to being doing better and other days he just wants to sleep,he has been in nursing home for 3 weeks now and I just would like a little information from someone that has been through this before,is there any chance that he can live for a year or so without a transplant? Or are just talking about a few months? Any insight would really help me out...thanks for your time!SandySandy, I know what your going through and it seems in my experience that no one has an answer. My sister has been in a nursing home for 1year9 months. 4 years ago the doctor gave her 6 months to live so they can go for years like this i know this is not what you want hear but no one knows the answer. Right now she is not doing good she is very confused which happened in the past due to some kind of infection like uninary tract infection. She went to the hospital Monday Sept. 21 with the confusion (nursing home thought it was a stroke) but it wasn't because of an infection this time it's due to progression of the disease. She is very weak, more confused and unstable more than she was before. Now the nursing home is talking about comfort like hospice...If you want to know more i will be glad to help and let you know how my sister is doing. Hope this has helped in some way. If you have more questions i will be glad to answer.Carol
    Anonymous 42,789 Replies
    • September 28, 2009
    • 01:28 PM
    • 0
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  • Well my mom was in end stage liver failure back in jan 2005the dr. gave her 1 year to live. she has always been a bigger women about 3 years prior to that she had weight loss surgery. so her liver failure was do to a fatty liver never drank a day in her life. she had bouts with confussion, depression, and excess water. she took like 10 different pills. To make a long story short. in march 2009 she went into the hospital 2 weeks later she went into icu she had trouble breathing and her kidneys started to shut down. We put her on dialiace(sp?) machine to clean the toxins out of her system. We had to put a feeding tube in her because she would choke on the food and about 2 days later we need to put her on a breathing tube while she was in icu. it was very hard to watch her lay there. during her fight she almost died twice. i asked her would she please keep fighting and she told me she mubbled she loves me and shaking her head no 2 days later April 28 2009 she passed away. all i can say spend the time with the people now enjoy them now. it was the worst kind of dead and i wouldnt want anyone else to go thur it. My mom tried for 3 years to get on the transplant list but she was doing so good on her death bed they told us she would be able to get on the list. She died waitingRIP MOM love ur daughter
    Anonymous 42,789 Replies
    • October 3, 2009
    • 10:15 PM
    • 0
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  • Hello, I am just trying to find some information on how long a person can live with last stages of liver failure,my brother who is only 41 years old had to be put into a nursing home due to liver failure,some days he seems to being doing better and other days he just wants to sleep,he has been in nursing home for 3 weeks now and I just would like a little information from someone that has been through this before,is there any chance that he can live for a year or so without a transplant? Or are just talking about a few months? Any insight would really help me out...thanks for your time!SandyHi Sandy, my brother is 43 and is going through the same thing. Two weeks ago they gave him 10 days, he made the 10days now they have given him 10 more. To be honest Sandy they dont know, they are not god, unfortunately it is out of our hands as well as theirs. It is a cruel cruel illness, my thoughts are with you and your family as I do understand what you are going through. Kindest regards Hayley
    Anonymous 42,789 Replies
    • October 10, 2010
    • 08:15 AM
    • 0
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  • I'm having troubles to finding out questions on this statement. I have a friend that his wife OD 5 yrs ago with Oxycontin . Has brain damage and is on stage 4 with her liver. Is there a certain time period she has to live ?
    mountaingirl 2 Replies
    • October 15, 2010
    • 07:05 PM
    • 0
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  • I'm having troubles to finding out questions on this statement. I have a friend that his wife OD 5 yrs ago with Oxycontin . Has brain damage and is on stage 4 with her liver. Is there a certain time period she has to live ? He blames himself for it. I feel really bad for him.
    mountaingirl 2 Replies
    • October 15, 2010
    • 07:07 PM
    • 0
    Flag this Response
  • Hello, I am just trying to find some information on how long a person can live with last stages of liver failure,my brother who is only 41 years old had to be put into a nursing home due to liver failure,some days he seems to being doing better and other days he just wants to sleep,he has been in nursing home for 3 weeks now and I just would like a little information from someone that has been through this before,is there any chance that he can live for a year or so without a transplant? Or are just talking about a few months? Any insight would really help me out...thanks for your time!SandyMy heart brakes with every word that I write. My father 63 was just told he has days maybe weeks to live. I feel as if they have given me a death sentence. He's home now and hes very week and tired an starting to be confused. Im praying everyday that this will turn around, but after reading the other post my heart feels so heavy. Can't stop the tears from falling. I wish you and your family well.
    Anonymous 42,789 Replies
    • December 7, 2010
    • 04:50 AM
    • 0
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  • From what I've found out, a persons life expectancy differs. Some are stronger then others, while there are those who are too far gone.Im 18 years old, married and living away from home, and am watching my mother die from Cirrhosis of the liver from drinking. We had seen the signs for years. The weight loss, depression, itching, yellowness of the eyes and skin, then she contracted Hep C. We just never thought anything of it. Not until a few months ago when my dad woke up one morning and found her on the floor in her own blood and fecal matter, confused. It must have been a horrifying sight for him.The moment that happened and my mother was put into the hopsital, I did my research. Searching the web I had come up with the conclusion that she has always had Cirrhosis of the liver, and may now be in the ending stage. Time after time doctors would just tell me and my father "shes very sick". I finally got *****d off about it and asked about her ammonia levels and about a biopsy. The stuttering fool obviously didnt know that I had tried and educated myself on the matter and merely mumbled that she was sick and because of no insurance they could not do a biopsy. The moment she was stable, they sent her home. And week after week she had to go back in the ambulance from more blood or falling with confusion. Soon her stomach had swell beyond belief as she continued to loose weight. She looked like a pregnant child.Just as my suspicions were, my father calls me this morning crying. Telling me a doctor finally ran some tests and said her liver was completely shot, dead, it was nothing more then a bundle of scar tissue. The doctor had said she had at most, 6 months to live. I had always had my suspicions but to actually have a date set, an expiration date of her life, it scares me. As a child i thought my parents would live forever. But now im fearful of loosing them both as my fathers will to live slowly goes with her life. At 18, im the middle child of the family but the most reliable. My older sister and younger sister are mentally ill while my older brother has ADHD and seems to have the mind of a 10 year old. My mother has been taking Lactose (i think its called) to try and rid her body of the poisons by making her use the restroom a lot. Well as for the last few days, its has not been working. She has been taking the medicine, but still no bowel movement. Is this a good sign, or a bad sign?
    DJMooMoo79 5 Replies
    • December 9, 2010
    • 05:36 AM
    • 0
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  • Wow. I have been searching the internet to find the same answer to the question you just asked. It sure isn't very comforting to hear someone else ask the question, and not have any answers. My mom has metatsatic liver failure (from breast cancer) and her story is too long to tell. I will sum it up by saying they have stopped all treatment and we are just waiting for the liver to completely fail. She lives at home with us and is more stubborn than anyone I've ever seen, so we've been going through something awful. Sadly enough, things have gotten to the point that I am ready for her to go...for the good of us all - including her. If anyone knows of any studies that have been done on this question, please let us know. Her doctor said it could be a few weeks and I did read somewhere today that once all of the signs start to show up (fatigue, loss of appetite, weight loss, confusion, itching, twitches/tremors/seizures, and jaundice) that there's only about 2-3 weeks left until they will slip into a coma and eventually death. My confusion on this issue is that she has everything except for the jaundice, but I've also heard that not everyone gets jaundice. Wow - what a long post - sorry. Anyway, if anyone else has some research, or examples, or comments, that would be very helpful.This is my exact story with my Mom. I have been looking for answers since May this year when we were told she has liver failure and it's to far gone to get a transplant. Good luck finding answers because I can't seem to find any otherwise I would gladly share. Best of luck
    Anonymous 42,789 Replies
    • December 12, 2010
    • 07:33 PM
    • 0
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  • From what I've found out, a persons life expectancy differs. Some are stronger then others, while there are those who are too far gone.Im 18 years old, married and living away from home, and am watching my mother die from Cirrhosis of the liver from drinking. We had seen the signs for years. The weight loss, depression, itching, yellowness of the eyes and skin, then she contracted Hep C. We just never thought anything of it. Not until a few months ago when my dad woke up one morning and found her on the floor in her own blood and fecal matter, confused. It must have been a horrifying sight for him.The moment that happened and my mother was put into the hopsital, I did my research. Searching the web I had come up with the conclusion that she has always had Cirrhosis of the liver, and may now be in the ending stage. Time after time doctors would just tell me and my father "shes very sick". I finally got *****d off about it and asked about her ammonia levels and about a biopsy. The stuttering fool obviously didnt know that I had tried and educated myself on the matter and merely mumbled that she was sick and because of no insurance they could not do a biopsy. The moment she was stable, they sent her home. And week after week she had to go back in the ambulance from more blood or falling with confusion. Soon her stomach had swell beyond belief as she continued to loose weight. She looked like a pregnant child.Just as my suspicions were, my father calls me this morning crying. Telling me a doctor finally ran some tests and said her liver was completely shot, dead, it was nothing more then a bundle of scar tissue. The doctor had said she had at most, 6 months to live. I had always had my suspicions but to actually have a date set, an expiration date of her life, it scares me. As a child i thought my parents would live forever. But now im fearful of loosing them both as my fathers will to live slowly goes with her life. At 18, im the middle child of the family but the most reliable. My older sister and younger sister are mentally ill while my older brother has ADHD and seems to have the mind of a 10 year old. My mother has been taking Lactose (i think its called) to try and rid her body of the poisons by making her use the restroom a lot. Well as for the last few days, its has not been working. She has been taking the medicine, but still no bowel movement. Is this a good sign, or a bad sign? So sorry to hear about your mother, yes lactulose is a laxitive that helps them rid of the toxins that go to their brain causing them confusion and hallucinations in high levels of ammonia. When they have bowel movement the toxins are released out of the body through their bowels and when they become constipated and do not go to the bathroom, it causes the ammonia to build up and thta's when the disorientation( hepatic encypalopathy) occurs. My mom is now taking it at 35ml 3x a day to help with her confusion. However, she also has high blood pressure, diabetes, retains fluid in the lungs and has shown all the signs of end stage cirrohsis, exept for jaundice. I TOO, WISH I HAD A SET DATE IN REGARDS TO, HOW LONG SHE WILL CONTINUE TO SUFFER, BUT ALL DR.'S SAY IS THAT SHE IS VERY SICK, WOMAN.
    lsanchez 2 Replies
    • January 31, 2011
    • 07:03 PM
    • 0
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  • I am so sorry to hear your story, I breaks my heart as I have two teenagers that are in your boat. My husband was just diagnosed with liver Failure due to excessive drinking. He has been rushed to the hospital twice in the past 4 years with the same condition as your mother of bleeding out. I also have the same questions that everyone on this blog has and what is their life expectancy, but it looks like that is not an easy question to answer since everyone has a different way of dealing with this illness. My husband has just started having kidney problems, his stomach has bloated and weightless is pretty dramatic. My daughters have been living with this illness (alcoholism) their whole lives. I suppose life expectancy will depend on how much their bodies can take, we are also with out insurance so healthy eating and keeping up with meds will be essential. I believe the medication that your mom was given is Lasix to help reduce fluid built up. It is important that she watches her sodium consumption and her liquid in take. I will add you and your family to my prayers, hang in there.
    Anonymous 42,789 Replies
    • February 11, 2011
    • 08:14 PM
    • 0
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  • My Mom recently passed away from end stage breast cancer. In April of 2010 she was told the cancer had spread to her bones, lungs, and liver. She took chemo till November 2010. The cancer was “stable” meaning it wasn’t growing. But from the beginning of November to the end of December the cancer had spread. After Christmas she became extremely disoriented. We called 911. At the hospital we were told her liver was not functioning correctly anymore. The cancer was not also in her brain. We were released after they made her more stable. Meaning she knew who she was, but she wasn’t herself. With-in three weeks of being released she died. I believe she died of liver failure. She had all the signs. She passed quietly. She was “out of it” on Thursday. Woke up for a couple of hours on Friday. Hospice called it “rallying”. She told us all good bye. And then on Saturday she stopped responding to anything. And that night she took 4 slow breaths and stopped breathing. If we hadn’t been watching her closely we would have missed her breathing change.
    Anonymous 42,789 Replies
    • February 14, 2011
    • 08:07 PM
    • 0
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  • My story echos yours. My mother has had cirohosis for years and years. She had esophageal varicies in 2003 and needed 10 units of blood. They told me then it was end stage and that she did not qualify for a transplant. They told me just a few months at the most. Well she is still going...been pretty rough lately. The lactulose or Generlac (generic) is basically a laxative that make the bowels move to remove the ammonia toxins from the body. Since with the liver damage most patients are not able to remove the toxins through the urine. She is tired and tired of being tired and she is weak and severely depressed. She also has COPD and gets shortness of breath.I just had to take her sleeping pills away since she took too many. I have been caring for her for many years now. But the root of her initial alcoholism still factors into her behavior now.We fuss about taking medications and she tells me things that are not true or lies and doesn't take her meds or lies and takes too much. The hepatic enclaphy (spelled wrong, but referring to the toxin build up on the brain that causes confusion) is terrible and surfaces quickly with just a few missed doses of the Generlac. This has been a very long ongoing thing for many many years. My mother drank until I was 19 and was hospitalized then for acites and malnutrition. Then she was sober for 10 years. Then drank one more year and was hospitalized for the esophageal varicies (basically varicose veins in the esophagus leaking blood from excess pressure due to poor blood flow through the liver)Anyway, I have looked for years for a time line or list of stages to try and figure out what to expect as time goes on...it is different for everyone...so no set of rules. My mother does almost nothing to be well, no exercise or vitamins or therapy or good nutrition. She is well enough to be unable to control but ill enough where there is no reasoning with her. Sigh, I just spent several hours today cleaning up the bathroom due to taking much too much Generlac. She told me the problem was eating dried figs...we don't have any dried figs or other fruit. But just another story to tell me. Same denial from when she was drinking.Anyways. Just venting and relating. Thanks.
    Anonymous 42,789 Replies
    • February 15, 2011
    • 02:56 AM
    • 0
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  • My story echos yours. My mother has had cirohosis for years and years. She had esophageal varicies in 2003 and needed 10 units of blood. They told me then it was end stage and that she did not qualify for a transplant. They told me just a few months at the most. Well she is still going...been pretty rough lately. The lactulose or Generlac (generic) is basically a laxative that make the bowels move to remove the ammonia toxins from the body. Since with the liver damage most patients are not able to remove the toxins through the urine. She is tired and tired of being tired and she is weak and severely depressed. She also has COPD and gets shortness of breath.I just had to take her sleeping pills away since she took too many. I have been caring for her for many years now. But the root of her initial alcoholism still factors into her behavior now.We fuss about taking medications and she tells me things that are not true or lies and doesn't take her meds or lies and takes too much. The hepatic enclaphy (spelled wrong, but referring to the toxin build up on the brain that causes confusion) is terrible and surfaces quickly with just a few missed doses of the Generlac. This has been a very long ongoing thing for many many years. My mother drank until I was 19 and was hospitalized then for acites and malnutrition. Then she was sober for 10 years. Then drank one more year and was hospitalized for the esophageal varicies (basically varicose veins in the esophagus leaking blood from excess pressure due to poor blood flow through the liver)Anyway, I have looked for years for a time line or list of stages to try and figure out what to expect as time goes on...it is different for everyone...so no set of rules. My mother does almost nothing to be well, no exercise or vitamins or therapy or good nutrition. She is well enough to be unable to control but ill enough where there is no reasoning with her. Sigh, I just spent several hours today cleaning up the bathroom due to taking much too much Generlac. She told me the problem was eating dried figs...we don't have any dried figs or other fruit. But just another story to tell me. Same denial from when she was drinking.Anyways. Just venting and relating. Thanks.Nobody really talks about all of the symptoms. There are truely horrifying. My husband was an alcoholic for over 30 years. He began drinking at 15 years old. I had no idea how bad his alcoholism was until about 10 years ago. He hid it pretty well. I thought he was just a guy who enjoyed his beer like most hard working men. He is 44 now. In the past 6 months he began having chronic diarrhea....about 8 times a day. He vomits a brown color in the morning. He has soiled his underwear many times. His urine is orange. He's had huge bleeding hemorhoids for the past ten years He's often ice cold on a nice day. He's a heavy smoker and when he lights a cigarette, he faints for about 60 seconds. I have seen him flap his wrist during a seizure. That is caused from the toxins going to his brain now. He's often very mean and menacing. He stares into space and doesn't make eye contact with me anymore. His belly gets bigger by the day from the fluid retention. I've watched his muscular arms and legs turn into little sticks. All of the muscle is gone. He often holds his lower abdomen from the pain. I can't tell if he's jaundice because his face is so red from his high blood pressure. I have noticed that his forehead is a shade of gray. His breath smells sweet and musty. It's very nauseating and I do anything to avoid him being close to me. This man refuses to see a doctor. I used to enjoy a glass of wine before dinner but gave it up when I saw what has happened to him. Having a drink is fine...even two. The party was never over for this man and now he lives with the fear of what is happening to him. He's also very depressed. I'm going to have to insist and call an ambulance for him very soon. I wish he would have listened to me all of these years. He always said that I was nagging him. If God needs to take him, I pray that it goes quickly. Watching this is one of the hardest things I've ever had to do.
    Anonymous 42,789 Replies Flag this Response
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