Discussions By Condition: Liver conditions

I'm 33 and was diagnosed with cirrhosis and end stage liver disease in March 2016.

Posted In: Liver conditions 13 Replies
  • Posted By: Anonymous
  • March 7, 2017
  • 08:28 PM

I had all the signs and symptoms of end stage liver failure including renal failure, extreme swollen abdomen, swelling so bad in my legs and feet I couldn't walk. Losing memory and thought process because of the toxins my liver wasn't processing. They said my only hope was a liver transplant but I had no insurance and I probably didn't have that long. The gave me blood transfusions, pulled liters of fluid from my abdomen, and put me on a lot of "fluid" pills to remove excess fluid. They said there was nothing else the could do kept me on the fluid pills and the meds to keep the toxins off my brain and sent me home and suggested I try getting on disability. It took months but I slowly got better. By the time I saw the disability doctor I looked fine and was denied so could not get on the list for a liver transplant. I still don't have insurance so can't afford to follow up with the liver specialist I saw in the hospital. I don't know what any of this means. They told me I was dying and now I seem ok but I thought once you were in end stage liver failure that was it. I don't know what to do any advice would be helpful. I don't know what to do.

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