Discussions By Condition: Liver conditions

Frustrated with lack of info from doctors

Posted In: Liver conditions 1 Replies
  • Posted By: Anonymous
  • October 10, 2007
  • 07:02 PM

My mother has elevated liver function levels for about 7 months now. This summer along with having stents placed in her heart, she found out that she had lymphoma. Also, she had been very jaundice for several months. About a month ago, she was told that she had complete liver failure, but did not know if the lymphoma was to cause or something else. They did a liver biopsy and said that it was not cancer. She began treatments for her lymphoma, but her condition continue to worsen. Last week, we found out that her Alk Phos is 231, Bilirubin is 6.2, Albumin is 1.4, and the other liver function levels were abnormal. She continues to be very jaundice, her abdomen is very dark, she is confused most every day and is extremely tired and falls asleep at the drop of a hat. Last week, the oncologist said that her lymphoma is in remission, but that a new CT scan showed that she has end stage cirrhosis of the liver. We went to a liver specialist yesterday and he said that she definitely had cirrhosis, her spleen is enlarged due to liver not functioning, but said that she could live for another 20 years. Each day my mother's condition worsens. Today she can barely sit up, is very sick to her stomach, has lost 20 pounds in three days, is very swollen (she has had 18 liters of fluid removed in the past 4 weeks, but despite medication the fluid is beginning to worsen again) has pain in the upper abdomen area, and has intense itching. She is extremely jaundice from head to the bottoms of her feet, but today her color has more of a grayish cast. I hope the doctor is right and even though the liver cannot be cured she could live a long life. However, I can't imagine her living long like this. I am frustrated because I cannot find information about the symptoms of end stage cirrhosis. I know everyone is different, and only God knows when my mother's life is near the end, but my family and I would like to prepare and help her and take off from work if her time is near. Also, we were told somewhere along the way that if the Alk. Phos. number was higher than 200 that the liver was not functioning at all. However, the doctor just sent us home and said that there was nothing more they could do. We asked about hospice, but he said that he did not think it was necessary. We feel so helpless watching her suffer and her condition deteriorate. I have taken a leave from work but have to go back Monday or take another 3 months off. We just don't know what to expect or what signs to look for to see if her liver is completely not functioning or if we are near the end of the road. Thanks for listening and any suggestions or information is appreciated. Have a great day!

Reply Flag this Discussion

1 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.