Discussions By Condition: I cannot get a diagnosis.

Years of pain, now rapid increase in symptoms

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: RamblinWreck
  • July 15, 2008
  • 07:53 PM

When I was 16 I had an ovarian cyst and elected to have surgery to lacerate it. Two weeks later I was in the hospital again because I had internal bleeding and appendicitis. The source of the bleeding was never found and the doctors supposed that it was from a ruptured cyst. Ever since then I have had chronic pain on my lower right side (site of both surgeries) and for the most part it feels like it's at the surface of an organ. (That tends to cause odd looks from doctors.) It definitely hurts worse when I have a full bladder, but it doesn't hurt to pee. I think it's the pressure that makes the pain worse.

3 and a half years later I was diagnosed with CMP (Chronic Myofascial Pain) in my back, probably from hunching over so much with abdominal pain. I asked my physical therapist to look at my abdomen, and she said that the muscle were very tight and gave me some stretches to do. That helps somewhat, but does nothing for my pain that feels like it's on the surface of something.

My pain tends to be worse just after a period, which makes me think it's estrogen related, since that's when the estrogen rapidly increases in the body. Unfortunately, recently I've been adding to my list of complaints very rapidly in the last 2 months. I have nausea about all the time, chronic headaches that pulsate on one side of my head, spider veins popping up everywhere, joint pain, dry eyes and mouth, photosensitivity (makes me blotchy and makes my headaches worse), chest pain, rapid heart beat, nails have become rigged, and insomnia. I've always had Raynaud's, bruise easily, and really bad fatigue when the pain is at its worse.

My doctors told me to go see a Rheumatologist and I still have a couple of weeks before my appointment. Do you have any clue what's goin on? I've asked my gyno about endometriosis but he said my symptoms didn't fit, and I went to a Rheumatologist when I was 16 but all my workup was negative. Thanks for any suggestions!!!

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