Discussions By Condition: I cannot get a diagnosis.

Wondering if symptoms are at all consistent with Lupus or something else?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • December 24, 2008
  • 08:49 PM

Hi everybuddy, my names Nicolette and I'm 20 years old...

I'm not sure at all what's going on with my body, but I've just got the feeling something isn't quite right and I can't help but wonder if all the issues I've got are related...

I've had Raynaud's phenomenon in my hands and feet for as long as I can remember, and I do notice somewhat frequent "canker sores" in my mouth. I've never had a butterfly rash or severe photo sensitivity though. I do have some early signs of arthritis, particularly my fingers have been slowly getting kind of crooked, particularly finger tips on my middle fingers are just becoming crooked and bent outward at the knuckle..the joints feel stiff and sometimes quite achey, especially first thing in the morning. it seems completely absurd for such a thing to happen to somebody my age =(

Over the past year, I've been in and out of my pediatrician (time for a regular doctor i think!) and the emergency room about 5 times with flank/abdominal pain. I was told by my pediatrician that the pain was probably a kidney stone, and was treated with antibiotics a few times, despite not having had a urinalysis for infection and not having found any visible stones in my urine...the pain flared up again about 5 months later and resulted in an ER visit where a catscan and an ultra sound showed "hydronephrosis" of one side, basically an enlarged swollen kidney with no visible obstructions (IE stone, tumor, cyst). I returned to the urologist for a follow up this week where they performed a renal scan with radio active dye to see if any of the valves were collapsed and would require a stint...but the "plumbing" seems to be okay, with no visible problems there...the hydronephrosis or swelling seems to come and go with no real explaination, and is helped a lot by anti inflammatories like motrin.

I'm not sure what they tested me for in the ER, they did take blood and urine samples but only told me that I didn't have any definitive signs of bacteria to point to a bladder or UT infection....I'm not sure if my blood counts were off at all, they didn't really tell me much about the labs. I wish I had questioned them a bit more about it, but I was so exhausted and miserable that I just didn't know what to ask.

I guess what I'm wondering is if my symptoms are remarkable enough to be consistent with Lupus? I'm puzzled because part of me feels like if it was a possibility, my doctor would have let me know and persued some tests? I guess I just feel a bit dumb self diagnosing, but I can't help but feel that it just isn't normal to have kidney problems, Raynauds and joint pain at 20 years old! I'm not overweight, I don't drink, smoke or do drugs, and I am honestly not one to complain about minor aches and pains, I just feel totally confused by my body right now!

Any input/suggestions/enlightenment on the subject would be very very appreciated.
Thanks all! xo
Nicolette

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