Discussions By Condition: I cannot get a diagnosis.

What in the world could be wrong in my neck?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: karljv
  • December 4, 2008
  • 00:26 AM

I am a 47 year old male. I am suffering from what appears to be a problem in the top of my neck. I've had several MRIs (two 25 years ago and two recently, one each of the brain and neck). I've also had ENT tests, EEG, x-rays, etc. I've seen a lot of doctors of various specialties and most have been very sympathetic but haven't found the cause of my problems.

I have constant problems with "lurching" where I feel like I'm falling to one side or the other but I don't actually fall. I get periodic attacks that feel like my head and ears are inside a box but I can hear and talk just fine but I feel like something is disconnected in my head.

I also have ringing in my ears, occasional episodes where I get flush and and then it dissipates. I feel better sitting than standing. When standing or walking I have trouble with my balance. I have to work hard with my feet to keep things going properly. Talking will tend to bring on my symptoms.

This all started 25 years ago when doing bench presses. I felt woozy and stopped and felt like I was in a fog the rest of the night. The next day I kept having those "lurching" feelings like I was falling. Eventually these symptoms subsided and I continued working out. After a while they came back and got worse and I stopped working out. However the sysmptoms did not go away this time, they kept getting worse until I couldn't work.

So I was off work for a couple years and went back into the job market working on computers, which was a lot less physical and stressful than my last job. For 20+ years my symptoms were lessened and manageable and I was OK with my limitations, which sometimes weren't all that bad.

But the symptoms are back and harshly so. Since July 2008 I've been having them a lot and I can't seem to shake them. Only resting on my one side or the other lessens the symptoms. Too much walking or standing or lifting, etc. makes them worse. Any pressure to the back of my head exacerbates the problem. I think I might have helped kick this off by holding my camera gear out in front of my during a session for too long (it was heavy, around 12 pounds). It was that night that I got a severe reaction which bad imbalance and my other typical issues.

There's more to this story which I can speak of in followup email, in order to keep this from getting too long.

I really want to find out what is wrong. Is this congentital perhaps and the exercise just bothered something already there? I've had two surgeries in the past (Paten Ductus heard surgery) and jaw surgery which re-constructed my face to eliminate a severe underbite. I have a right-sided head tilt (scoliosis?). The MRIs apparently haven't shown much of interest to the Neurologist and Neurosurgeon I consultere here locally.

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