Discussions By Condition: I cannot get a diagnosis.

Unexplainable swelling in my left leg.

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Mogaar
  • October 7, 2008
  • 04:51 PM

Okay, so I've been back and forth between more doctors than I can count and I haven't really gotten anywhere. I need some serious advice to take to my doctor, because he seems to be at a loss as well.

I'm a 21 year old female, 5'4" and 150 lbs. and I've had swelling in my left leg, usually localized to my ankle, since June of 2006. I had no injury to the ankle or the leg, it just appeared one morning when I woke up. It sometime extends out to my toes and up through my mid to upper calf.

Since the swelling started, it's been some sort of a medical rollercoaster. I had an x-ray done with no results. In May of 2007, my doctor had blood work done and it came back hyperthyroid. Without doing enough research myself, I followed my doctors advice and had the radioactive treatment to kill my thyroid. My thyroid levels went back to normal, but I was told that I should be put on medication, and the ankle swelling was still there. I then asked my doctor about congestive heart failure. She ordered an EKG and a chest x-ray, both of which came back normal. I then started getting really sick, and found out my doctor had stopped practicing. I started going to a new doctor who had found that I had become SEVERELY hypothyroid. I was put on Synthroid and after a few months, the thyroid levels evened out again but the swelling is still present. I was put on TRIAM/HCTZ (diuretic) which has helped with the swelling quite a bit, but it still obviously there and comes back immediately if I miss even one dose.

Doctors kept saying to wait it out, the swelling was probably due to my thyroid, but seeing as how it has been swollen through high, normal, and low levels, a year before my thyroid was ever diagnosed.

Since January, I have had multiple blood tests, an Ultrasound in both legs, a CT Scan in my abdomen and pelvic area, all of which have come back normal. My doctor put me into physical therapy to see if that would help, but it just made the swelling worse. I also went to see a Podiatrist who took x-rays and found that the swelling was not directly related to my ankle, it was a build up of fluid in my entire leg.

As of right now, I have no idea where to go at this point. My doctor seems to be confused as to what is causing it. He doesn't believe it's any form of heart issue, and the ultrasound didn't find any blood clots. I'm just at my wits end with this, it's been going on for two and a half years now and I'm just ready for it to be over with and figure out what's wrong with me.

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