Discussions By Condition: I cannot get a diagnosis.

Undiagnosed illness - very weak

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: maudem
  • January 11, 2009
  • 01:09 PM

I need some emotional support from anyone who has experienced what I have been going through. For over 12 years I have developed a rash whenever I get sick. It's totally debilitating and puts me in bed for several days. Two weeks ago I got a sinus infection, then got the rash. The rash went away but I have been bedridden ever since. I'm extremely weak and exhausted, have a stiff neck, feel fluish though no fever and am now getting depressed and fearful. I have never been in bed sick for more than 4 days in my life and feel like I will never get well again. I went to 2 rheumatologists who sent out extensive bloodwork to try to figure out what is wrong with me. They think I have some sort of autoimmune disorder but don't know which one. I don't have any stiffness of the joints. Has anyone had similar symptons and gotten better? Will I ever feel like myself again?

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