Discussions By Condition: I cannot get a diagnosis.

undiagnosed frequent fainting spells

Posted In: I cannot get a diagnosis. 24 Replies
  • Posted By: Anonymous
  • October 31, 2006
  • 07:15 PM

Hi -

I too am looking for someone who has had similar symptoms that may know which way to go. Have had total of 5 fainting episodes since May 2006. Most of which are accompanied with sharp shooting pains to head. All of which are accompanied with feeling of sudden extreme fatigue, weakness thru-out whole body, off-balance feeling (sometimes dizzy) right before I faint. Slurred speach afterwards, and lethargic for 2 - 3 hours following episode. Very tired the day following. Have been tested for hypoglycemia, diabetes, thyroid probs, ECHO, tilt test. All come back looking good. Next trip is to the Neurologist tomorrow. Generally feeling back to normal within a few days of each episode for approx a month at a time. 1st episode happened in May of 2006, 2nd wasn't until Aug., then 2 in same day in Sept, & now this last one on 10-18-06.

Starting to scare me a little. Any input/advice would be appreciated.

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24 Replies:

  • Hi - I too am looking for someone who has had similar symptoms that may know which way to go. Have had total of 5 fainting episodes since May 2006. Most of which are accompanied with sharp shooting pains to head. All of which are accompanied with feeling of sudden extreme fatigue, weakness thru-out whole body, off-balance feeling (sometimes dizzy) right before I faint. Slurred speach afterwards, and lethargic for 2 - 3 hours following episode. Very tired the day following. Have been tested for hypoglycemia, diabetes, thyroid probs, ECHO, tilt test. All come back looking good. Next trip is to the Neurologist tomorrow. Generally feeling back to normal within a few days of each episode for approx a month at a time. 1st episode happened in May of 2006, 2nd wasn't until Aug., then 2 in same day in Sept, & now this last one on 10-18-06. Starting to scare me a little. Any input/advice would be appreciated. I answered another thread about pain in the arm and neck. I athink you might also want to try the same thing I suggested to him. Have you ever been diagnosed with anxiety? I'm telling you there is nothing worse than walking aro;und feeling horrible allthe time, wanting to know what is going on with you and the doctors can't seem to figure it out. Once you have had every test they can think of and they all come back normal I would suggest asking about emotional related problems. Please don''t take this the wrong way, most people put a stigma on anxiety and depression when they shouldn't. These are deseases too, and they can make you feel this way physically. There are many stories of people going around for years feeling bad with headaches, dizzy spells, fainting spells, trouble breathing, unexplained numbness, and pain. Sometimes it's nothing the doctors can give you an answer for, but I would definatly have that checked out.
    zionlion 8 Replies
    • November 1, 2006
    • 02:13 AM
    • 0
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  • My husband has had these same type episodes and has been diagnosed with everything from atypical seizures to panic attacks to cardiac syndromes to diabetes to hypoglycemia to atypical migraines, and at 43 was put on total disability with them. He has had them since he was in his late teens. We have come to the conclusion that they are atypical migraines which have most often been tied to high levels of stress, either pysical or emotional. They increase when he's either sick or under heavier stress loads emotionally. He too had been through all the cardiac testing and tilt tables and stress testing and EEGs 9which wasn't totally normal during an episode "but not a seizure") with no pertainant findings. He has gotten the most relief from being started on an antidepressant (now is using lexapro) and then starting a holistic natural product called Nexoprin. Here is there link Hopefully this will help you some. Even if it's just knowing that you're not alone. His episodes are also always accompanied with a sharp headache or migraine prior to his "black outs". And he also has the "post tictal" state almost like a post seizure patient does too and is wiped out after them. He was even worked up for chronic fatigue syndrome at one time. They are also at times accompanied with some confusion, slurred speech and not knowing where he is, and no recollection of how long or at times that they even happened at all. http://www.tritonhealth.com/nexoprin.phpHi - I too am looking for someone who has had similar symptoms that may know which way to go. Have had total of 5 fainting episodes since May 2006. Most of which are accompanied with sharp shooting pains to head. All of which are accompanied with feeling of sudden extreme fatigue, weakness thru-out whole body, off-balance feeling (sometimes dizzy) right before I faint. Slurred speach afterwards, and lethargic for 2 - 3 hours following episode. Very tired the day following. Have been tested for hypoglycemia, diabetes, thyroid probs, ECHO, tilt test. All come back looking good. Next trip is to the Neurologist tomorrow. Generally feeling back to normal within a few days of each episode for approx a month at a time. 1st episode happened in May of 2006, 2nd wasn't until Aug., then 2 in same day in Sept, & now this last one on 10-18-06.Starting to scare me a little. Any input/advice would be appreciated.
    Anonymous 42,789 Replies
    • November 1, 2006
    • 05:29 AM
    • 0
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  • I too have been having frequent dizzy and fainting spells for two years now and the doctors have no clue what it is. they have done several tests and still nothing. Also I tend to get a pain in my lower left side right above my belt loop, where it is just suvere pain to try and breath.
    Anonymous 42,789 Replies
    • November 8, 2006
    • 03:51 AM
    • 0
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  • I have the same problem, I have had fainting spells since I was 16, so for 6 years now. I do have an anxiety problem that has been diagonosed, but right now I don't have insurence so I am trying to just cope. It is scary though, I've been fainting more often as of late, then again my stress level has risen. I did want to mention frequent fainting can also be a sign of low blood pressure as well other problems, you definatly want to go to the doctor... I hope to as well, soon as I can get some insurence.
    Anonymous 42,789 Replies
    • January 20, 2007
    • 08:05 PM
    • 0
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  • Do you take a good quality vitamin/mineral supplement? I don't mean Centrum - that is just worthless. Fainting and orthostatic hypotension could be signs of vit/min deficiency and most go undiagnosed. Worth trying. www.vitacost.com has good prices and good quality. You want a good one with high folic acid (800 mcg) and B complex. Also, a calcium./mag would be good. A prenatal might be good.Hope this helpsDoctor of Oriental Medicine
    acuann 3,080 Replies
    • January 20, 2007
    • 11:02 PM
    • 0
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  • my 20 year old daughter would have fainting spells, nausea, weak, shaky, clammy feeling after being at work for about 1 hour or a little more. After all the testing the doctor told me to take her home and not to bring her back because there was nothing wrong with her. She would be extremely fatigued for a few days after each episode. The episodes got closer together until she rarely finished an 8 hour shift. In desperation I turned to the internet and found a site called neurally mediated hypotension. It fit my daughter like a glove. Too our relief, adding salt and more fluid to her diet has decreased the symptoms immensely. Check it out.
    Anonymous 42,789 Replies
    • January 27, 2007
    • 07:20 PM
    • 0
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  • HI,My husband has all the same symtoms,you and everybody else mentions.They have done so many test .and nothing.But last week we ended up in the E.RAnd my husband dident want to get poked agin so he had them do a hepititesC .test ,that his main Doctor wanted to have him have done the following week.Well it came back positive!!! For hep C and other liver damagesSo its one more thing to try. hoping for relife, Brandi
    Anonymous 42,789 Replies
    • January 28, 2007
    • 02:25 AM
    • 0
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  • wondering why so many are having these fainting spells..... I have had them off and on since decemer.. stress related? or just the state of the world......
    Anonymous 42,789 Replies
    • January 28, 2007
    • 03:18 PM
    • 0
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  • My daughter had emergency back surgery, which was very successful. But ended up having to stay in the hospital a full week with fainting spells they couldn't diagnose. They tested her for everything. Her sypmptoms were very similar to what you are describing.I wracked my brain to try and all I could think of was the huge amount of medication she was taking. She had been taking a high dose of Neurotin for knee pain. The knee pain was just the first sign of the nerve compression that was being caused by the L4 & L5 disk rupture she had the surgery for. Yet the hospital staff continued her on the same dose of Neurontin, because it is their policy to keep a patient on the same medications they are on when they are admitted. To me, that is a policy that needs review, since if a patient has a surgery that resolves a problem and a medication is no longer needed, then why give it? One of the problems with the GP not attending to the patient when they are admitted to the hosptial anymore.Anyway, I suggested this to the charge nurse and the next day the did review the medications and completely changed the amount of pain meds she was receiving. The fainting and dizziness dramatically improved, as did the crashing headache she would get after each faint. It took about 4 or 5 more days at home until it finally went away.We believe it was drug interactions and overdosing.If you have recently started a new medication or a new herbal supplement, you could be having an interaction or allergic reaction causing the fainting.
    Anonymous 42,789 Replies
    • January 28, 2007
    • 03:45 PM
    • 0
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  • I too have been having frequent dizzy and fainting spells for two years now and the doctors have no clue what it is. they have done several tests and still nothing. Also I tend to get a pain in my lower left side right above my belt loop, where it is just suvere pain to try and breath.hey,i am going through the same and there is a good guess that it may be a low iron level.Go to the doctor and get an iron check :)
    Anonymous 42,789 Replies
    • September 29, 2007
    • 02:50 PM
    • 0
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  • I`m 17 years old and I`ve fainted over 8 times since I was 6 years old. My last episode was on Monday, February 18. Usually I faint because I don`t eat for long periods of time, but this was the first time I fainted after eating. I ate a banana for breakfast, a muffin for break and spaghetti for lunch. I was outside having a cigarette. i felt sick to my stomache, so i sat on the railing and put my head between my legs. it didn`t help much. so i went inside my school, walked down the hall towards the bathroom and knew i couldn`t make it. i turned into the first classroom, sat down and got up to walk to the garbage because i felt like i was about to puke. I woke up to teachers surrounding me and the first thing i thought was "I didn`t just faint...!" Apparently, I smashed my head on a table when i collapsed. I`ve gotten several blood tests when I had to go to the hospital during elementary and i don`t have diabetes. My grandma and uncle have diabetes, though. Everytime I went to to the hospital or for a blood test, they said the same thing "Everything looks good." I hit my head on cemente, metal... uh, i don`t know what I didn`t hit my head on. I remember i fainted in my aunt`s bathroom and woke up beside the toilet during a party, and I wasn`t drinking. Whenever I smoke pot, smoke cigarettes or drink I`m fine. I was fainting long before I tried it. I grew up in a house of chain smokers, could that have done it?- thanks
    Anonymous 42,789 Replies
    • February 23, 2008
    • 00:05 AM
    • 0
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  • I've fainted 3 times in the past 6 mths or so and have just come to think, by some recent very abnormal BP tests (24hr holter monitoring of my heart and BP.. other tests were showing up as being normal), that it may be being caused by my blood pressure but I still need to go to neurologist thou for more tests to check once again that I dont have some form of epilepsy. (I assume epilepsy that may be something the neuro will send you to be tested for via an EEG... Neuro also got me to have a MRI). A specialist thou who looked at my weird BP results (it's up and down and very all over the place).. told me they are due to a sympathetic nervous system dysfunction manifesting in a way he's never seen before. He thou dismissed that for a reason for my faints. so who knows?? my doctors are slumped. My other specialist thou no heart problem has been found and Ive had all the heart tests (echo, exercise stress test, EEG?? etc) which all came up as normal.. .he still says it could still possibly be a heart problem which may not show up on tests unless i have an eposide while wearing the monitor. Best luck on getting the faints worked out. umm I guess they could also be some kind of mini stroke esp since you have slurred speech after them, cat scan may be needed to rule that out.
    taniaaust1 2,267 Replies
    • February 24, 2008
    • 02:46 AM
    • 0
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  • I just got out of the hospital with my third fainting spell in six months. I have seen about ten different doctors in the past three days and none of them have a clue why I am having these spells. I have pretty much the same symptoms, I have bad pains in my head, I get very warm and dizzy. I have been through a ton of tests and they all come out ok. I have been so frustrated that no one knows what is going on with me that I don't know what to do. The doctors took away my license for six months and I have two jobs have to worry about getting to everyday. I thought that I was the only one going through this until I found this site. If anyone can give me more information on this my email is russellnfamily@hotmail.com thank you
    Anonymous 42,789 Replies
    • October 10, 2008
    • 05:36 AM
    • 0
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  • I too have been having frequent dizzy and fainting spells for two years now and the doctors have no clue what it is. they have done several tests and still nothing. Also I tend to get a pain in my lower left side right above my belt loop, where it is just suvere pain to try and breath.I have started having these symtems as well. usually while sitting. I have disscomfort in my left abnomen as well. my mother and her sister have been having fainting spells for years and not have been diagnosed with any disorders. my episodes were quite frequent until i started to take antacids (zantac) and antihistimines (zyrtec). I dont know your age but i am 47 and these symtoms started 1 year ago. althougth my mom ses she has always had this stressed that age was a factor with her and her sister. I started taking the zyrtc because i found a website that when i put in my symptems came uo with food allergies. my mom denies food allergie. i have allergies all year long I think she has allergies she is not awhare off. I was having alot of bloating so i started taking zantak again. i was diagnosed with acid reflex years ago and put on zantak but quit taking it because my one of my vains got so engourged it scared me. I still watch my vains while taking this medication.
    Anonymous 42,789 Replies Flag this Response
  • I am a 20 year old female. I have been sick for about 4 years now. I was coping fine before, but I have gotten a loss worse and it is very difficult to do just about anything anymore.I have severe pain in both sides. Sometimes it will spread to my back and chest and I can't breath. Nausea, vomitting, lightheadedness, dizzyness, weakness, fevers, hot and cold sweats, flushed face, constantly exhausted and tired, loss of memory, poor concentration, blacking out, fainting, can't sleep, loss of appetite,...etc......I have been to over 20 doctors (in the US and Germany) off and on since this started and I get the same thing from every single one of them, "go see a shrink!" I have seen Mental Health Therapists, Councelors, Phsyciatrists, and so forth, but just like the doctors, they just pass me off to someone else. No one keeps me around long enough to do ANYTHING. A small handfull of doctors actually did some tests, but everything came back pretty much normal. It's really ******g me off to the point where I won't bother going to see anyone anymore. What for, if all they are going to do is say I'm fine and send me home to wait for a bill that will say "Pay by ... and thanks for wasting your time!"Also I will NOT take any meds that I am given because I think they are BULL****. It's just something else they can add to the bill and worsten my health, mental and/or phyical!!!My email addy is ... ultimatedream89@yahoo.com ... Feel free to contact me for anything!~Deuces!
    Anonymous 42,789 Replies
    • February 27, 2010
    • 09:09 PM
    • 0
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  • hi,iam 19 years old and i had fainted twice this week and Iam so afraid about it . I couldnt breath properly and I had a severe headace and my heart started to beat fastly. please can anybody help me...
    Anonymous 42,789 Replies Flag this Response
  • I have these too but a lot more frequently. The doctors don't know what it is.. but testing my blood sugar and eating accordingly helps with this. good luck finding out what it is.
    Anonymous 42,789 Replies Flag this Response
  • I've fainted 3 times in the past 6 mths or so and have just come to think, by some recent very abnormal BP tests (24hr holter monitoring of my heart and BP.. other tests were showing up as being normal), that it may be being caused by my blood pressure but I still need to go to neurologist thou for more tests to check once again that I dont have some form of epilepsy. (I assume epilepsy that may be something the neuro will send you to be tested for via an EEG... Neuro also got me to have a MRI). A specialist thou who looked at my weird BP results (it's up and down and very all over the place).. told me they are due to a sympathetic nervous system dysfunction manifesting in a way he's never seen before. He thou dismissed that for a reason for my faints. so who knows?? my doctors are slumped. My other specialist thou no heart problem has been found and Ive had all the heart tests (echo, exercise stress test, EEG?? etc) which all came up as normal.. .he still says it could still possibly be a heart problem which may not show up on tests unless i have an eposide while wearing the monitor. Best luck on getting the faints worked out. umm I guess they could also be some kind of mini stroke esp since you have slurred speech after them, cat scan may be needed to rule that out. Thought i'd best update my post from 2006 on this thread. It took a few years to get diagnosed but my faints turned out to be Postural Tachycardia syndrome (POTS). I almost went unconscious with a "tilt table" and collapsed on getting off of it after it was brought to standing, thou i dont know if I'd test positive with a tilt table "all the time" as the POTS in my case is probably caused by my CFIDS and all my signs and symptoms come and go with it as they do in CFIDS. (Thou with some conditions eg heat and after eatting combined, my collapses are common). In my case my heart rate can go up as much as 40 beats per minute on standing from laying (for a POTS diagnoses it only needs to go up 30 beats per minute when standing.. so my case of POTS is quite bad). I'd be interested to hear if anyone else on this thread ended up having their condition diagnosed.
    taniaaust1 2,267 Replies Flag this Response
  • Hi - I too am looking for someone who has had similar symptoms that may know which way to go. Have had total of 5 fainting episodes since May 2006. Most of which are accompanied with sharp shooting pains to head. All of which are accompanied with feeling of sudden extreme fatigue, weakness thru-out whole body, off-balance feeling (sometimes dizzy) right before I faint. Slurred speach afterwards, and lethargic for 2 - 3 hours following episode. Very tired the day following. Have been tested for hypoglycemia, diabetes, thyroid probs, ECHO, tilt test. All come back looking good. Next trip is to the Neurologist tomorrow. Generally feeling back to normal within a few days of each episode for approx a month at a time. 1st episode happened in May of 2006, 2nd wasn't until Aug., then 2 in same day in Sept, & now this last one on 10-18-06. Starting to scare me a little. Any input/advice would be appreciated.I know someone who had the same exact thing and just got hers fixed a couple months ago. go to a chiropractor and have your neck adjusted. for her..something in her neck was out and pinching a blood vesal or nerve (I don't remember which) and she passed out at LEAST once a day. and she went to a chiropractor 3 times a week for a couple weeks and trained her neck to stay where its supposed to be, and shes been fine ever since.
    Missa995 38 Replies Flag this Response
  • My son is 16 and he has had 51 fainting episodes in 23 days - yes you read that right 51. It started outof the blue one Sunday afternoon when he got up from watching t.v. and went to get a snack and woke up on the floor. His record is 6 in one day and he didn't have a day without at least 1 for 21 days. He has had 2 episode free days.He has had about every test available. I think they are leaning toward Vaso Vagal Syncope. We are seeing a neurologist on Friday. All but 3 of them are from sitting to moving - he almost always falls within a few feet from standing. So far he has not hurt himself at all - but he is an actor and has trained in stage faints/falls since he was 5 years old and I account it to muscle memory because his body knows how to fall down safely. Also because most are in a path, he falls forward as he walks and it usually out of the way of objects. He knows he is to stay away from going down stairs for at least 30 seconds after standing.He can't drive until he is 6 months free of an episode and they aren't stopping but have slowed down to a more 'normal' level. No one has ever heard of having this many so fast.
    Anonymous 42,789 Replies
    • September 22, 2010
    • 03:57 AM
    • 0
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