Discussions By Condition: I cannot get a diagnosis.

Undiagnosed and Frustrated

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: sznnrk
  • December 6, 2008
  • 03:52 AM

I am a barely 40 Year old (Dec 2) white female who is in general good health, only slightly (10lbs) overweight. I have had a history of migrines monthly correlating with my menstrual cycle, however, over the past 2 months, the migraines have increased to 2-3 times per week with much greater intensity. I take Imitrex for the migraines but sometimes it doesn't work. Starting about 3 weeks ago I began having extreme dizziness upon laying down or rising from a laying down position. This progressed to dizziness on a consistent basis with a general overall "the room is spinning" feeling. I saw my GP because I thought perhaps I had an inner ear infection or fluid. She did an exam and stated that there was no fluid or infection in my ears but did note that my heart rate was low (57). I am not an athlete by any means, but she did say it was slightly lower than normal. So, she referred me to a Cardiologist and an ENT to rule out any inner ear issues she may not have detected. Then, about two weeks ago, right after this GP visit, I started experiencing numbness in the 3 left fingers of my left hand and my lower arm. Also, my lower left cheek goes intermittently numb. The hand and arm remain numb. So, I have been to the Cardio, who took my BP seated, then laying down. My BP plummeted when I layed down. He ordered an Echo and a Holter Monitor, but told me that I likely had an inner ear issue and attributed the numbness in my hand/arm to stress (which is probably as low as it's been in my life). So...I visited the ENT and he did an exam, then did a few other tests, like sobriety tests (touching nose with eyes closed, following fingers with eyes--both of which I passed) and then asked me to put my right foot in front of my left and when I did, I tipped over to the left...freaked me out. Anyhow, he sent me for inner ear testing and an MRI to rule out inner ear tumor. He (ENT) told me the next step is a neurologist. I don't have any test results back yet (except for the inner ear tests, which were all within normal range and the ENT has ruled out inner ear). I will be honest, I'm a little weirded out and beginning to wonder if these symptoms are in my mind. I DESPISE going to the doctor and this is like torture to me having to see all these different docs and the whole waiting game. Does anyone else have a clue what may be going on or do I just have to wait on the results of the Echo, Holter and MRI? Any wise input would be appreciated.

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