Discussions By Condition: I cannot get a diagnosis.

Tremors with fibromyalgia

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: jackrorabbit
  • January 28, 2007
  • 01:17 AM

I have been to UVA to John's Hopkins to NIH(who dismissed the tremors as anxiety after less than 2 hours). No one has any clue as to what is causing it or why. I have multiple doctors including ER doctors who have seen the tremors and say there is no way it is anxiety because I lack the panic and worry that goes with anxiety. I have tremor attacks 2+ times a day lasting from a couple of minutes to over an hour in length; they almost always begin in the right shoulder and then move to the right leg and sometimes both legs depending on the severity of the attack. My wife has seen me looking grey at times during attacks. I have had nausea, hot/cold spells, cold with sweating, speech troubles during a tremor attack, a 2 year long headache(which has been attributed to the fibro), during an attack I have difficulty keeping balance or walking. I have a chronic recurrent sinus infections(even after 4 surgeries in one year), an appendectomy during the surgeries. I have been tested for just about everything that is normal to look at including Huntington's disease without any answers. My B-12 and vitamin D levels are very low and I am on suppliments for both. My wife and I are truly befuddled and frustrated with the whole situation. Any help would be nice.

Reply Flag this Discussion

5 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.