Discussions By Condition: I cannot get a diagnosis.

Tired of loosing my mind...

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: braindrain
  • December 1, 2008
  • 04:42 AM

I have been struggling with two problems for several years and have not received the help I need. The first, I get confused and feel dazed at times. Some days are worse than others and some days I am incapacitated.
On good days, I am alert and have plenty of energy and I can concentrate fairly easily. I have found that I can no longer multi-task, even on the best of days. My good days are becoming rarer, about once a week. A normal day for me, now, consists of forgetting where I left things, forgetting what I was just saying, and what I am doing. I have started writing notes, since I am having problems remembering what I am doing, but I can't find them. I get tired easy and weak. I have difficulty leaving my home, since I can't find keys, my purse, coat, etc. which I could have in my arm. On my bad days, my personality is effected. I get angry so easily, which has never been my style. I walk around in circles hoping to remember what I am looking for. I tried to go to my friend's house and couldn't figure out how to get on the expressway. It took three times of passing the exit, before I figured it out. Often I have trouble speaking, can't find the words, can't complete a thought, and sometimes slur my speech. There are days that I can't understand what someone is saying to me. I hear the words, but can't make sense of it. It is as if they are speaking random words. I also have trouble reading, either because of my concentration, or I can't understand it.

I have had a MRI and have been in the hospital where they decided it is my migraines and put me on Keppra. I don't have the head pain much anymore, but the other stuff is getting worse.

If that isn't enough, when I eat, I get pain immediately in the center of my upper abdomen, directly below my breastbone. I feel a little nauseated as well. It does pass fairly quickly, but does make me put off eating.

Since I don't have insurance, getting time with a neurologist is difficult, and tests are expensive. I have had an ultrasound of my abdomen and blood work in addition to the MRI. I also had an EEG which showed something, which could just be the result of my migraines or seizures. That is the reason for Keppra.

I am having difficulty working, driving, and even cleaning my house. Please help if you can.

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