Discussions By Condition: I cannot get a diagnosis.

stinging and itching pain, red and purple color change and Freezing Cold on both feet

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • November 11, 2017
  • 09:34 PM

I have been told that I have fibromiyalgia, RSD and also spondilorartropathy. My HLA B27 is nearly Positive. My sedimantation level is normal. All the symptoms show on MRI only. I have tried TNF blocker and corticosteroids they give me a temporary relief and never diminishes the pain on the contrary increases. At the time of the flare, My body does not allow me to walk or step on my feet. It is impossible. I get really weak and tired. I have to stay in bed at least 2 months before I can get on my feet. At this time I use TNF blockers and pain killers however as soon as these are finished and I start to walk the pain and tiredness come back. I even now have the same type of pain on the right side of my wrist and hip. It is stinging as if I have had a work out and over used my muscle cause it aches as well like a tooth ache type and it is stiff. My left side is not like this, it is only on my left foot there. It feels like both feet are in water. They are cold. The pain is stingy and it turns red and purple when they are hanging. As soon as I put them up they turn back to their normal color. I also do not have lupus. I have been tested for that and lyme as well. 2 years ago I was checked for MS however My brain scan was also normal. I would appreciate if you can help me with the diagnose and how this can be treated.Thank you.

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