Discussions By Condition: I cannot get a diagnosis.

So confused. Please help?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • March 25, 2008
  • 11:56 PM

Ok, I think I might have posted before but I don't recall and if so I can't find it anyway.

I'm an 18 year old female, somewhat overweight but not like really heavy, average height. My problems started when I was seven and they've been progressively getting worse and new symptoms appear now and then but it's hard to say with any certainty when anything actually began. My symptoms also remit and relapse, coming and going with no rhyme or reason. I never am completely better, I always walk slowly and fatigue easily, but I can usually walk.

I usually use a pair of forearm crutches to walk; they reduce the fatigue and help me to walk more quickly. Sometimes I walk on my own, when I'm feeling really good. Sometimes I can't walk at all and I'm in a wheelchair. On the worst days I'm in a wheelchair and my arms get too fatigued to propel myself. I have poor balance and coördination and tend to "miss" when I go to reach for things. I fall down a lot. I have trouble remaining in a sitting position if my back is unsupported, especially if I'm not in a chairlike position (ie, with my legs dangling off something).

I don't know if it's related, but I also get terrible tingling sensations in both hands and feet, like they're falling asleep. This happens even when I'm standing straight or laying down and there's nothing I can do but wait it out.

My muscles are atrophied, but the doctors do not know why. My legs are much worse than my upper body.

Again possibly irrelavent, but my senses are also somewhat dulled. I wear glasses because I'm incredibly nearsighted, I wear a hearing aide because I have severe hearing loss, and although there's no way to test the other senses that I know of, I'm sure they're dulled because people always smell things that I cannot, and I spice my foods to levels most people don't believe just because otherwise I can't taste it. My eyes are very slow to focus when I look at something, so I cannot drive.

I have constant pain, sometimes better and sometimes worse, but always there. It focuses in the hands, feet, leg muscles, back, and neck, but it's not uncommon for everything else to hurt as well. The only medicine I'm on is diclofenac, which lessens the pain just enough to allow me to walk and move about, but it still hurts. They had me on Percoset for a while and it did not help.

I'm really at my wit's end. All the tests they've done are coming up negative. My MRI was clean, as was my CAT scan. Any suggestions?

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