Discussions By Condition: I cannot get a diagnosis.

small child

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: answers please
  • November 13, 2008
  • 02:07 PM

I have a 9 year old son who was born with a clubfoot. Had casting until he was 9 months old then had surgery. Found out he was missing a whole muscle in his calf that caused the curvature. Had another surgery at 9 and a half months. At 18 months had mmr immunizations and stopped talking. At 3 was diagnosed with strabismus (lazy eyes). At 4 had first eye surgery. At 6 developed asthma. At 7 has another lazy eye surgery. At 8 was diagnosed with adhd. At 8 had a cyst removed from his eye brow. At 9 (age now) was finally diagnosed with autism. He has very small stature. He is 49 inches and 51 pounds. He is in the 3rd % for weight and under the 3rd% for height. He also has developed anemia, leukopenia (low white blood cell count). He had been on boost and flinstone vitamins for 4 months straight. The white blood cell count is back to normal, but still anemic.
He has averaged 1 lb and 1 inch per year growth for the last 5 years. He hasn't gotten any taller this year. He has gained 2 lbs due to the boost. He used to be in the 75th and 50th % up until age 3-4. Cant get the doctor to do anything about it. He doesnt sleep well. Has been a restless sleeper for years. Had a sleep study done this summer, came back with nothing. Said his sleep problems were due to his autism. We also saw a geneticist this summer, everything was normal there too. He has now started thinning out hair, has had a stuffy nose for 4 months straight. Have tried everything from benadryl to advair, to singulair. I need some serious help. I dont know what else to do. Doctor wants to wait on the growth hormone study until next month. I am so frustrated I could scream!! I just want to know what is wrong. He eats great. Has high energy. Sorry this is so long. Had alot of stuff to add.

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