Discussions By Condition: I cannot get a diagnosis.

really could use some help...and advice

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: memaw1
  • August 25, 2007
  • 10:58 PM

:( Hello, I am 42yrs. old and I have had a proublem with swelling all over my body...face,hands,legs,ankles,you name it and it is swollen! its gotten really bad now my feet look like footballs and my legs hurt as well from it and my butt even hurts so bad I can hardly sit down.
I know my glands are swollen on my neck as well but I also have other health conditions I am an epileptic and I have kidney proublems as well but never followed up on my dignose of pollycistic kidney disease that was about a year ago when dignosed. you will have to forgive me on my spelling. but someone please help if you can. Thanks

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9 Replies:

  • When was the last time you had a physical? It could be a symptom of heart disease. It's hard to say since it isnt mentioned if you are taking any medication and how long this has been going on. Need more details. Best bet is to go in ASAP and get a full blood work-up. Good luck!
    Janelv 2 Replies
    • August 26, 2007
    • 01:03 AM
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  • :( Hello, I am 42yrs. old and I have had a proublem with swelling all over my body...face,hands,legs,ankles,you name it and it is swollen! its gotten really bad now my feet look like footballs and my legs hurt as well from it and my butt even hurts so bad I can hardly sit down. I know my glands are swollen on my neck as well but I also have other health conditions I am an epileptic and I have kidney proublems as well but never followed up on my dignose of pollycistic kidney disease that was about a year ago when dignosed. you will have to forgive me on my spelling. but someone please help if you can. Thanks I haven't had a physical ever that I can remember, and I do take meds. for my seizures like Depakote ER, Keppra, Requip(for restless legs), zoloft and just started a new one this week Lamectal and the swelling has been going on for at least a year or so but its just gotten to the point just now were it hurts to walk, breath, and like I mentioned earlier my bottom hurts so bad its unreal!
    memaw1 3 Replies
    • August 26, 2007
    • 01:41 AM
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  • peripheral edema from http://en.wikipedia.org/wiki/Edema Some phenomena may distinguish different causes of peripheral edema. Most peripheral edema is pitting edema - pressing down will lead to a shift in the interstitial fluid and the formation of a small pit that resolves over seconds. Non-pitting edema may reflect lymphedema, a form of edema that develops when the lymph vessels are obstructed, or myxedema, which occurs in hypothyroidism.Causes of peripheral edema are:high hydrostatic pressure of the veins, leading to poor reabsorption of fluidvenous obstruction, e.g. deep vein thrombosis (typically one-sided)congestive heart failurevaricose veinsasymmetric compression of thigh and leg (e.g., knee pads, tight jeans)low oncotic pressurecirrhosismalnutritionnephrotic syndrome (renal protein loss)epidemic dropsyobstruction of lymph drainageinfectioncancerfibrosis after surgeryfilariasisinflammation (active secretion of fluid into the interstitial space due to increased membrane permeability by inflammatory mediators):allergic conditions (e.g. angioedema)any other form of inflammation (tumor - or swelling - is one of the main characteristics of inflammation) You really should be asking your doctor about that.. so many different things cause this issue. Seeing thou you have kidney disease.. it could be related to that eg Nephrotic syndrome. Nephrotic syndrome is a disorder where the kidneys have been damaged, causing them to leak protein from the blood into the urine. It is characterised by proteinuria (>3.5g/ day) hypoalbuminemia, hyperlipidemia and edema. The most common sign is excess fluid in the body. This may take several forms:Puffiness around the eyes, characteristically in the morning.Edema over the legs which is pitting (i.e. leaves a little pit when the fluid is pressed out, which resolves over a few seconds).Fluid in the pleural cavity causing pleural effusion.Fluid in the peritoneal cavity causing ascites.Hypertension (rarely) Some patients may notice foamy urine, due to a lowering of the specific gravity by the severe proteinuria. Actual urinary complaints such as hematuria or oliguria are uncommon, and are seen commonly in nephritic syndrome. May have features of underlying cause, such rash associated with SLE, or neuropathy with diabetes. Examination should also exclude other causes of gross edema- especially the cardiovascular and hepatic system. quoted from wipedia Polycystic kidney disease (also known as Polycystic Kidney Syndrome)(PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterized by the presence of multiple cysts (hence, "polycystic") in both kidneys. The disease can also damage the liver, pancreas, and rarely, the heart and brain. http://en.wikipedia.org/wiki/Polycystic_kidney_disease by wikipedia.. there are two types of polycystic kidney disease ..one lethal and for the other it says The disease often leads to chronic renal failure and may result in total loss of kidney function, I have kidney proublems as well but never followed up on my dignose of pollycistic kidney disease that was about a year ago when dignosed. i guess it would be a very good idea if you follow it up or get counselling if you are in some form of denial about it. treatment is available even if you do have end stage renal disease End-stage renal disease: There are two options for replacing kidney functions: dialysis or transplantation. Healthy (non-PKD) kidneys transplanted into PKD patients do not develop cysts. best of luck..
    taniaaust1 2,267 Replies
    • August 26, 2007
    • 02:38 AM
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  • Please please get to a doctor right away! PKD is very serious and you need to be treated.
    aquila 1,263 Replies
    • August 27, 2007
    • 06:48 PM
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  • :mad: Thanks to all whom have tried to give me some great advice to get checked out. But I did go to the Doctor yesterday and I was so upset when I left there, because he stood outside the door before coming in and was making comments to the nurse about all that was going on like it was a joke!!! I thought you was suppose to tell all that was happening and some of it was stuff he knew of before! Instead of asking me a serious question when he first came in, the first thing he done was laugh and ask if I was saving all of my proublems up for that visit! yea he did end up having them run some blood work (don't know the results yet) and was suppose to run a urine test but the nurses had me go ahead and leave! I don't know maybe I am just wasting my time with him. Thats why I hate going to doctors its so hard to find one that really simply just wants to actually HELP the patient.
    memaw1 3 Replies
    • August 28, 2007
    • 01:22 PM
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  • As doctors try to fit patients into an allotted time slot (say 15 minutes), to expect them to deal with a blizzard of problems in that time is unrealistic. Some doc wrote a book about getting the most out of your doctor's visit and the first thing was to pick 3 of the worst problems. As the doc zeros in on one of the three, then hopefully he'll ask you if you are having the symptoms for that disease. You CAN schedule an extra-long appt. time, just tell the nurse that you need extra time. Or better yet, switch docs. This one will have already pegged you as a "crock" and probably won't listen to you, EVER.
    rad-skw 1,605 Replies
    • August 30, 2007
    • 11:40 AM
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  • Get ahold of Jerome Groopman's "How Doctors Think." And I agree-- definitely find someone who will listen to you and respect your privacy!
    aquila 1,263 Replies
    • August 30, 2007
    • 03:53 PM
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  • Well I have something else that has been happening lately, I know or figured out the next day that what all was happening to me and couldn't figure out one day well it was an accidental over dose of my seizure medication. But like I said I couldn't figure out what was happening to me until the next day I relized when I went to take my medication and some were missing. See I also have this very severe memory proublem and some times I do things and don't even know I am doing it or if I did at the moment I will not recall anything at all about it. Well something else has happened which started about 4am. this morning, I began to feel really strange and nauseated I was weak and my face was as white as a sheet I was light headed extremly bad and clumsy as well, my dog must have known something was wrong because he didn't leave my side all day long. I do know I took a pain killer for my back proublems last night with my other medications the pain med. name is oxaprodin, and I did recently start another new med. for my seizures called Lamictal so I don't know if they counter reacted or I took too many pain killers???? If anyone out there knows anything about these kind of symtoms please help me figure out what is going on now it is 11:30pm. and most of the symtoms are worn off but I know a few weeks ago when I felt like this it was an accidental over dose except with that one I would sweat really bad and was seeing and hearing things. I hate living a life with a memory like this it can really get too a person at times.
    memaw1 3 Replies
    • September 8, 2007
    • 04:33 AM
    • 0
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  • Your restless leg syndrome is caused by a dopamine deficiency. You should supplement yourself with the protein l-tyrosine, iron, and folate. Biotin is also sometimes prescribed. Vitamin B6 is I believe also necessary for the creation of dopamine--and serotonin, although that's a different amino acid involved.Your bad memory, in regards to short-term memory, is because of a deficiency of cortisol, which is derived from dietary cholesterol or fatty acid synthesis (intake of saturated fat, thus). However, an excess of cortisol is harmful to long-term memory.Your long-term memory problems are probably a result of b-vitamin deficiency and vitamin k deficiency: all of these are necessary to create myelin sheaths, and I think omega-3 helps the memory too.Your swelling could be goiter, in which case the problem is a deficiency of iodine. However, if you have general swelling, that could be an excess of Vitamin A (triggers water absorption by cells--perhaps hence it's value in reducing mucous) and an excess of chloride (which synergizes with vitamin A and raises its level/effect). Listen, stop overdosing yourself with medication and find out about the chemical pathways of your body and correct them.Incidentally, hypoglycemia can trigger mental issues and memory problems, not to mention shaking, et cetera. This can be through a deficiency of manganese, which creates insulin, in which case it is classic hypoglycemia; or, it could be from an excess of manganese and a comparative deficiency of dietary cholesterol (cortisol is the natural antagonist of insulin), in which case you have so much insulin that it turns all the glucose in your blood into glycogen, which stores energy but does not provide it. Thus you are effectively hypoglycemic from that.Hallucinations can be caused by high levels of calcium. Vitamin A leeches calcium from the bones and brings a high amount of it into circulation. You want to balance this calcium with magnesium, since magnesium is the body's calcium channel blocker and will thus prevent the release of adrenaline, which causes panic attacks.Moreover, you might be suffering from a deficiency of sodium, and thus your body is retaining water. If you have panic attacks, take bitterroot. Otherwise known as calamus or sweet flag. This is a powerful anti-anxiety and was used by the North American Indians medicinally. I have tried some myself and all it does in terms of bad effects is cause a slight headache and a slight increased sensitivity to light. Its effects last for three hours. You chew a piece of bitterrroot: you don't swallow it.But, seriously, you need to correct underlying issues. A deficiency of sodium will cause the production of renin, which will trigger the fight or flight hormones to be released. So, taking something salty could be good for you, so long as you don't go overboard and trigger dehydration through that.Also, if you are suffering from, in addition, a manganese excess, note that manganese also triggers adrenaline and noadrenaline. So, for a vegetarian like myself, manganese is a bit of a problem.All nutrients are necessary, obviously. It is a matter of amounts (and balance).Here are some resources:http://www.acu-cell.com/dis-mus.htmlhttp://www.acu-cell.com/dis.htmlhttp://www.acu-cell.com/acn.htmlhttp://www.herbcraft.org/calamus.htmlhttp://holisticonline.com/Herbal-Med/hol_herb.htmPlease leave a reply post if you read this. I would like to know if the information was able to reach you.Well I have something else that has been happening lately, I know or figured out the next day that what all was happening to me and couldn't figure out one day well it was an accidental over dose of my seizure medication. But like I said I couldn't figure out what was happening to me until the next day I relized when I went to take my medication and some were missing. See I also have this very severe memory proublem and some times I do things and don't even know I am doing it or if I did at the moment I will not recall anything at all about it. Well something else has happened which started about 4am. this morning, I began to feel really strange and nauseated I was weak and my face was as white as a sheet I was light headed extremly bad and clumsy as well, my dog must have known something was wrong because he didn't leave my side all day long. I do know I took a pain killer for my back proublems last night with my other medications the pain med. name is oxaprodin, and I did recently start another new med. for my seizures called Lamictal so I don't know if they counter reacted or I took too many pain killers???? If anyone out there knows anything about these kind of symtoms please help me figure out what is going on now it is 11:30pm. and most of the symtoms are worn off but I know a few weeks ago when I felt like this it was an accidental over dose except with that one I would sweat really bad and was seeing and hearing things. I hate living a life with a memory like this it can really get too a person at times.
    Anonymous 42,789 Replies
    • October 12, 2010
    • 10:23 AM
    • 0
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