Discussions By Condition: I cannot get a diagnosis.

Raynaud - Globulinemia ??

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • July 15, 2008
  • 06:31 PM

I have Raynaud phenomenon since I was around 20. That was just the beginning of weird and apparently not related events. The doctor decided to do lots of test to find out if it was related to a different decease. After several tests, he finally diagnosed Hipergammaglobulinemia... which I have no idea what it means. The doctor died a few weeks after that diagnosis... I've been experiencing really weird and apparently not related health problems... but I've already visited different doctors and they keep saying that they need more synthoms to understand what's wrong...

I would be more than happy believing that nothing is wrong with me, but I can’t buy that when I think about all the things that had happened to me in the last years.
Just to mention some examples, I feel tired almost all day, even if I haven’t done anything; I feel dizzy frequently, it takes a long time for me to heal wounds (I ended up in ER 3 years ago when I had a teeth extraction and the bleeding just didn’t stop), I frequently have blurred vision, I loose a lot of hair, etc.

Please... if you know of a doctor or hospital that might be able to help me, I'll really appreciate your help...

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