Discussions By Condition: I cannot get a diagnosis.

Rapid degeneration of facial skin causing much discomfort.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • August 17, 2010
  • 06:39 AM

Last June the onset of what I'm treating as atypical trigeminal neuralgia was soon accompanied by the rapid breakdown of my facial skin, within mere days leaving it doughy, infirm and sensitive. The eyelids, once crisp, no longer seem to lie properly on the eyeballs and the upper eyelids sit and rub against the now slightly sagging brow, causing a constant discomfort.

The texture is no longer the same. The insides of my cheeks became completely smooth. There are newly created ridges in the corners of my mouth. My lips are always uncomfortable and they constantly stick together due to the drastic change in surface texture.

The skin on occasion is extremely sensitive to previously imperceptible stimuli—an eyelash on my cheek might drive me crazy if not removed with haste. It now reddens and irritates easily.

I was crushed when the one dermatologist I went to saw nothing. I've been terrified of the prospect of going through that again. I've always assumed the neuralgia and rapid skin degeneration to be related, but in my endless scouring of the internet I've yet to come anywhere close to an explanation for the latter. I'm tired and desperate and I know I can't be the only person this has ever happened to. Any help you could offer would be immensely appreciated.


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