Discussions By Condition: I cannot get a diagnosis.

Question about porphyria

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: buggysmom
  • March 12, 2008
  • 05:26 PM

WOW! I read some of the links about this, and my god, does this fit me! I began when I was 16 and pregnant..horrible pain (I say now that I would rather go through labor again with no meds, than to have this pain!). It has happened, I would guess, another 10 times since then. I have 3 children, and in all three pregnancies, these "attacks" happened in the 7-10th weeks, and again in my early 3ed trimesters. It has happened probably another 4 or 5 times since then. The last time that I went to the ER, I begged the Dr to just give me a shot (since I seems like if it is enough to take the edge off and I can sleep, it goes away), and the ***k refused to give me ANYTHING for almost 3 hours, until he got some results back. URRG. He finally gave me a shot and I was able to go to sleep, and the next morning, it had went away for the most part, with just the muscle pain from the vomiting. Everytime that this has happened, I am told that it is just bad gas, or that it is gastritis. NEVER has anything ever came back on blood work, Xrays, or the one urine sample that they take.

My question is, since I have not had an "attack" in almost 2 years, can the test me for this, or am I going to have to wait until I have an attack again?

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