Discussions By Condition: I cannot get a diagnosis.

Please help...trying to find out what is wrong with my daughter

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: TX Realtor
  • March 12, 2008
  • 07:00 AM

This will be kind of long but bare with me. I am new to this forum and I am trying to get some help with what is going on with my 16 year old daughter. It all started in Dec. 2007 when she started having sever right abdominal pain. It took us a lot of test and doctors but they finally did take out her appendix. After that she developed an infection in her abdomine and had to have her belly button opened two more times. After being on antibiotics for a month or so the surgeon said that the infection had gone away. During the time that she had the surgery she started feeling really bad and we ask her pediatrician to check her for mono, she had mono twice in the past and it seemed like that is what was going on with her. Sure enough her EBV were over 2000. Then she decided to send her to the Infecious Disese specialist because most doctors don't think that you can truly get mono but once and her titers were way too high. We met with him and he did some bloodwork. Everything started coming back normal except the ANA test it was positive. Her ANA was speckled and her titer ratio was 1:1280.

He did a test for the EBV DNA (I am not sure what the test was called) but it came back negative so he says that she does not have mono. But he has no idea why her titers are so high. So we went back to the hospital yesterday for a full panel for the autoimmune diseases. The pediatrician also sent her for more bloodwork to check for Wilson's disease and a few other things.

Her symptoms are extreme fatigue, low grade fever everyday, abdominal pain and even goes to her back under shoulder blades, nausea and vomiting, headaches, sore joints, having trouble swallowing, see also feels like she might have RLS. For the past 6 months or so she has also developed hives, they occur when she scratches herself or comes in contact with certain things.

Anybody have an idea what could be going on with my daughter? I would reallly appreciate your advice.


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