Discussions By Condition: I cannot get a diagnosis.

Please Help....I need a new doctor

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • June 30, 2008
  • 07:50 PM

I am SO tired of the labels that have been put on me.

I got my period at the age of 9.
At the age of 10 I started to get cramps that were not normal.
I am now 32 years old.

My first ob-gyn was a very caring, older gentleman who took me seriously. He told me that cramps (dysmenorrhea) should NOT cause pain that stopped me from standing up, walking and going to school. I should not be having pain radiating to my knees and upper back. I should NOT be throwing up because the pain was so bad. So, he prescribed me pain meds and muscle relaxers to try to calm the cramps.

While the med regimen worked, I couldn't live like that. SO, he put me on birth control pills. However, I only go off of them (get my period by taking inactive pills) 4 times a year. This way, I was only on the narcotics for 16 days of the year instead of 3 or 4 days a month. I was doing well with the treatment. We also scheduled an exploratory surgery to rule out any serious disorders.

While waiting for the surgery, my doctor passed away.

Since my doc was part of a practice, they scheduled me to meet with one of his partners. He said the surgery would go as scheduled and we would take it from there.

When the surgery was over, they found NOTHING. Nothing abnormal at all - I've seen the pics and they are all shiny...no lumps, scars, etc.

So, the new doctor (and everyone else at this practice) is now assuming that I am making up this pain. They refuse to give me any prescriptions except for birth control and Ibuprophen (which is seriously like eating candy - it doesn't even TOUCH this pain). I'm sorry, but just because you can't see anything, does NOT MEAN I AM NOT IN PAIN.

Now, they want to do another surgery - the EXACT SAME ONE as before. What is the point?? Its not like something would show up there now. I've had this pain 20 years and if nothing was there 7 years ago, I highly doubt it will be there now.

Has anyone else experienced what I am going through?? Is there ANY hope left?? My other issues may not be related, but here they are:

Weight Loss and Weight Gain (for 2 yrs., I may be heavy and then thin for 2 years - no diets, I just lose and gain the weight on my own which fluctuates 50 lbs.)

Acne - I've had it since I was 12 and nothing makes it go away (Murad, Rx's, ProActive, etc.)

Constipation (SEVERE and Chronic)

Back Pain doing simple chores like sweeping the floor

my mustache is getting darker (but I AM Italian) :o)

Breast sensitivity MOST of the time

Hair thinning - large amounts of hair fall out in the shower and when I brush it.

Thanks for taking the time to read this. I am open to any suggestions as to what is going on. I am also trying to find an endocrinologist that specializes in Gyno. in the Southern NJ or Philly area if anyone knows of one.


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