Discussions By Condition: I cannot get a diagnosis.

Please Help. I'm tired and I'm running out of fight.

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: ashley84
  • March 23, 2007
  • 04:54 PM

Before I get into the detailed symptoms list... I should introduce myself. I am 22 years old, and a full-time college student of Audio Engineering. I'm also a blues singer and songwriter (when I'm well enough that is). Ever since I was a child, I've been experiencing odd symptoms. I've had a tremor in my hands since I was probably 7 years old. I would always complain as a child, after I ate, that the food made me feel sick. I didn't like sweets very much because of the sick feeling I would get. In fact, family would always give me candy as a child, and I'd stuff it in my huge dresser drawer and hardly eat it. When I moved to Texas, I became known at my doctors office for being "The Asthma Child". It was quite severe, with frequent bronchitis. In my younger teen years, my mother always claimed I was lazy when I didn't clean something up, but she wasn't listening to me when I said I didn't have enough energy to do it. Cleaning my room would literally wipe me out. In 2004, I saw the family doctor about sugar not making me feel good. He tested me for diabetes (which came out negative) and said I had Benign Essential Tremor. I found out recently, he actually reported I had hypoglycemia to the insurance company and never reported the tremor. Somehow he NEVER told me. I went to a new doctor in '06 for the same problems, and he gave me a GTT, they watched me like a hawk and found out I had hypogclyemia. The doctor told me to read a book and learn how to control it myself. He sent me to an endocrinologist who tested me for addison's, told me I had an anxiety disorder and that I don't really have hypoglycemia. I also got sent to a dietian... whom of which I told certain foods were making me sick, told me I was fine and to eat them anyway. Well, his diet ended up making me about 5X worse. This year I went to a woman general practicitioner. She had me diary everything I was eating, and saw that I was wheezing after cheese and wheat. Took it out of my diet, and my chronic diahrrea stopped (it still wasn't normal)... She then told me to never eat gluten again. Also, I've never been able to hold a job long-term. They would tell me I needed to go as fast as I could. I would think I was going fast, and it was apparently slow. I never had the energy to keep up with a normal employers demands. My last job instantly dropped me off the schedule after they saw a doctors note for my hypoglycemia.

I've had some suspicions about my development in my mother's womb. She ate SO much sugar it was messing up her blood levels, and the doctor told her to stop. She of course didn't... Alright now, here's the list of symptoms... Bear with me, I really need some suggestions:

-Exhausted VERY easily - chronic.
-Chronic Fatigue.
-Hungry often & if food is not ingested like clockwork numbness, blurred vision, and dizziness occur quickly (about every 2 hours).
-Some days I have energy to function, and others I can only get up to go to the bathroom.
-Frequently dehydrated
-Bloated feeling 1-2 times per week
-Fuzzy thinking - several times a day
-Vertigo once per day
-Dizziness 8-10 times a day
-Numbness in hands and feet (accompanied by blurred vision). 8-10 times a day. Sometimes my tongue and calves will get numb along with it.
-General feeling of unwellness 98% of the time
-Diharrea, 6 months consistent (at times for a month straight)
-Blood Pressure is erratic (sometimes its normal, sometimes its low, sometimes it drops when I stand up).
-Heart rate jumps about 20 beats from sitting to standing.
-Blood sugar levels are erratic.
-Muscle Pain in arms, legs, lower/upper back, mornings if not constant throughout the day
-Very sensitive to foods (especially all processed ingredients), constant
-Headaches, once every few days
-Vivid nightmares, 1-2 times per week
-Severe Allergies, constant
-Sporadic rashes, has itchy burning feeling, 1-2 times per week
-Heartburn, occurs when I eat protien and starch together
-Feeling of a Rock/solid mass in my stomach, occurs when protiens are eaten with starch (such as a deli sandwich)
-If over 80 degrees, my body feels heavy and almost like its being attacked, I get headaches and extremely tired
-Below 71, cannot keep warm

New Symptoms (began within the past 3 days):

-Joint pain, stiffness, and swelling in hands, wrists, knees, ankles, and toes.
-Slight fever. Temp is normally 97.3-97.6, and its been 98.9

Previous Doctor Diagnosis:
Benign Essential Tremor
Hereditary Neuropathy

I've been on the hypoglycemic diet for about 10 months now. I do not eat anything processed. Only healthy oils, everything gluten free, soy cheese, beans, 5-10 severings of fruits and veggies daily, and a multivitamin extracted from food, along with 1000mg a day of calcium citrate. The synthetic ones always made me feel sicker.

Last night, I was so upset... I broke down and was practically ready to give up. My husband got a little more fight in me after that. I've been reading a book called "Never Be Sick Again". It talks about cells, how certain nutrients affect them positively, how the cells work, etc. I've tried healing with diet, and I felt alright (meaning I could function minimally)... Instead now I'm getting this arthritic symptoms.

Any suggestions you have of what it could be would be greatly appreciated. Everyone thinks differently, and sometimes things don't instantly flash in a doctors mind like a neon sign. Ever since childhood, I've pretty much had the SAME blood tests over and over again. They check my thyroid and for anemia. I never had either of those things in the millions of times I've been poked in my life. My last MRI was in 2004, my last catscan was probably a year ago, and they did some chest X-rays. The doctor in the emergency room said my chest x-rays were fine... then the radiologist looked over it and said there was something on my back that looked a little more dense than it should, but they just wanted me to get another one done because they thought it was a fluke. Well, I and my doctor both completely forgot to do another one.

Thank you all in advance. I'm so tired of suffering with my health.

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