Discussions By Condition: I cannot get a diagnosis.

Please help!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: chriswilson
  • June 3, 2008
  • 09:35 PM

I experience mild bone pain/tenderness in my skull followed by a softening of the bone. This creates flat areas/indentions and has gradually created deformity.

I had an MRI scan done and the Doctor told me it came out normal, much to my surprise. Doctors have told me maybe it's an ' anatomical deviation'. This is not so as it has continued to progress. I went to a neurologist and he prescribed me mucsle relaxers for the pain. That was no help at all and I was not directed anywhere to go to get help, like a bone disease specialist,etc. I went to a bone clinic to request a bone scan, they said a neurologist would have to refer me to get a cranial bone scan, as they did not do that there. I feel like I am not being taken seriously and I have long been at a loss as to what to do. This is something real I am still experiencing and the problem is not going away on it's own. This has caused me much distress.

I need help,advice,direction. Please help!
Thank you very much.

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