Discussions By Condition: I cannot get a diagnosis.

Please Help

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: puglovernkellogg
  • April 22, 2008
  • 08:09 PM

I have been sick for a long time. I have severe joint, muscle and nerve pain. I have abdominal adehesion disease from having had 9 abdominal surgeries and a hysterectomy a year ago for endometriosis and Polycystic Ovarian Disease. I was diagnosed with Interstistatial Cystitis and have undergone various treatments for this with no relief. I get frequent infections, rashes, can not be in the sun without getting sick, joint swelling and pain, absesses that have required 15 surgeries to remove, chronic High White Blood Count, Chronic Elevated Sed Rate, Chronic Elevated C-Reactive Protien Levels, Low Vitamin D levels, High Neut#, High Platlet, Low Creatinine Levels, etc. My ana was negative and so were my immunoglobulin levels. My doctor told me that he knows I have inflammation etc but he is not going to look any further into finding out what is causing it. He said that I need to suck it up and deal with it. He told me that he is going to take me off my pain medicine and to see a shrink (after I started to cry). I really do not know what to do at this point. I live in a remote area in Idaho but have been seeing doctors in Spokane, WA. I really need help. Can anyone help me? Thank you.

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