Discussions By Condition: I cannot get a diagnosis.

Pelvic Pain, NecroInflam Colon Polyp, Urinary / Gyn symtoms. Frustrated. Please help.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 20, 2009
  • 08:45 PM

So incredibly frustrated. Hoping someone out there can be of some assistance. My current medical situation has greatly reduced my quality of life.

Not sure what if any of these symptoms are related. Hoping someone can make some sense of them.

Recently I've been bouncing between a urologist, gastroenterologist, gynecologist and colo/rectal surgeon with little relief. I've recently had had a sigmoid. (a colonoscopy 2 years ago- normal), pelvic / abdominal cat scan with contrast, ultrasound, urinalysis, bloodwork, endoscopy, gynecologic cultures etc.

For about 3 months I've been plagued by fluctuating burning pelvic pain, gastrointestinal upset (burping, gas, reflux, bad taste etc.), vaginal and and bladder irritation. My acne has flared up as well but wondering if this is just stress. I recently had my first abnormal pap (ASCUS w/ a normal biopsy- gyn claims this is unrelated).

*What else has been found: a large necroinflammatory colon polyp with ulceration (approx 1 inch) that needed to be surgically removed 2 weeks ago (still recovering and was told this could contribute to overall inflammation), evidence of reflux, vaginal irritation (in the absence of sexual activity / gyn considering dermatitis), strep b (was told this is not treated and is normal to find in some women) and a yeast infection... treated and now clean cultures.

History: I have a history of elevated testosterone / androgen levels and significant acne and am thus on the birth control pill and spironolactone for polycystic ovarian syndrome. Also have had elevated sedimentation levels on blood work in the past. I also have had a history of IBS, allergies, sinus problems, asthma (well controlled), and eczema / dermatitis. I am otherwise a healthy 33 year old woman. Never smoked, rarely drink, normal weight, good health care. HIV negative. I've had similar flare ups before (more than once misdiagnosed as irritable bowel and/or a UTI / irritable bladder) and they eventually calm down but this time my burning pain is showing no signs of relenting.

Not sure if this is relevant but my mother also has had bouts of undiagnosed inflammatory issues. The most recent case was profound hypercalcemia / weight loss with no underlying cause. Eventually returned to normal and endocrinologist is stumped.

Any suggestions or help would be greatly appreciated. Thanks in advance.

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