Discussions By Condition: I cannot get a diagnosis.

PCS...but What?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: endrun
  • November 12, 2008
  • 02:52 PM

Had my gallbladder removed last April and what led to that were stones one of which was near the neck so it was done on an urgent basis.
For the last two months I've had bowel dysfunction beginning with diarrhea then worse constipation than I have ever experienced with occasional loose stool. I have continued elevation of liver enzymes and a worsening of my hypothyroidism. I am a long term Celiac patient as well only discovered in 2002 at the age of 45, I am 51 now.
I have recently had abdomonal CT scan and MRCP, both of which showed no structural abnormalities. My Gastroenterologist keeps repeating the phrase that I am "comfortable"--which is untrue. I have pain radiating to the back and bowel dysfunction mostly with terrible constipation and my liver enzymes are elevated and he doesn't know why. His approach is to retake liver enzymes in Dec. and Feb. which is fine but in the meantime no answers and no relief of my misery. He doesn't feel a liver biopsy is necessary at this point. There is no communication possible with his office because his personal nurse is a certifiable lunatic(this is a statement of fact based on some experience, not a gratuitous swipe to label someone).
I really have two questions: a) could the Abdominal CT and MRCP have missed bile duct stones and b)under the conditions that no structural abnormalities nor stones ARE in fact present, what does one do to alleviate this post-cholecystectomy dysfunction and misery short of the potentially equally or worse miserable ERCP and all that it can do?
Thank you.

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