Discussions By Condition: I cannot get a diagnosis.

One big nightmare

Posted In: I cannot get a diagnosis. 38 Replies
  • Posted By: Anonymous
  • February 23, 2008
  • 01:58 PM

33 yr old female, started with 1 lump behind ear, june 07,now generalized, i mean they're everywhere. Last cold etc may 06. Tests so far:
6 nov - CT scan, no internal nodes
9 nov - inguinal node biopsy - reactive, told these nodes r crap 4 lab tests but were the biggest n easiest at the time!!!!!
3 dec - ebv+ cmv+ but not active, had contact @ 17 yrs
3 jan - HEP a,b,c Neg, rbc through the roof
24 jan - rbc low, mild anemia but wa thro roof on 3 jan, HIV neg, ANA+, reactive protein ( infections etc ) neg
19 feb - colonoscopy n gastroscopy, both wi biopsies, awaiting results.
Haem want more biopsies, waiting 4 nodes 2 get big enuf, meanwhile am soooooo tired n weak, come up in nasty rash occ, n have livida reticularis which is a nasty purple mottle of the skin. Temp up n down but rarely over 38, sweat easily even with very mild exertion, 21 pounds lost in weight, aches n pains n little nodes on chest wall???? Has anyone been thro summat similar, have 2 kids who want their mum back, a gorgeous hubby whos missing his young energetic wife, i just want my life back xx

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