Discussions By Condition: I cannot get a diagnosis.

No diagnosis yet...been 4 months..help

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: MesseD
  • May 30, 2008
  • 08:23 PM

Hello everyone...I'm hoping someone can help me find out what the ***l is wrong with me...I beg of you.....
First off I am not allergic to anything, haven't had any medical problems, or stds.
I am a 20 yr old male. I had been a smoker for about 3 years (pot and cigs), I quit cigarettes this last December and used pot as a crutch to get away from them. The month after I had quit cigs...my girlfriend dumped me for some guy who just got out of prison... and soon after that (all in January) said she had tested positive for herpes. So I went and got myself tested for everything and it all came back clean.
Around February I started getting a sore throat, random headaches, random fevers that came and went. I went to the Dr and he said my spleen was swollen and he thought it could have been mono or cmv (both tests came back negative). I started to notice I was spitting up more and more of this black brown colored stuff in my spit.
Within a month, my spleen was no longer swollen...but I was having abdominal pains and my throat was red and irritated, along with headaches and diarrhea(diarrhea went away after a few days, and the headaches would be more severe on some days then on others). Also a weird lump appeared on my hard palate on the right side of the roof of my mouth and right behind that the soft palate has been swollen as well (it is not discolored).
Anyways, I went back to the doctor and over the next few months, had first taken a round of antibiotics(didn't do much), did a round of antivirals(I think that only got rid of a canker sore that was growing on my lip..). I had a chest x-ray that came back clean. My Dr then said he thought it might be a sinus infection of some sort, and I should probably either get a ct scan of the sinuses or just do another round of antibiotics. I decided both. ..(during this whole time I had visited 2 ENTs and they looked down my throat with a laryngeal mirror and said my throat looked ok)
So I got my CT scan results and my doctor said the only thing wrong was that I had a cyst in my sphenoid sinus and my right cheek sinus thing was slightly enlarged...but that it wouldn't be causing my problems. So now he thinks I should go see an infectious disease specialist because he thinks it isn't anything that is common.
During all of this.. most of my symptoms have died down except for throat pain/discomfort when I swallow(has worsened), the gunk I have been spitting up is worse then it was(I don't have a cough....I just hack the crap out of my throat many times a day). My throat has a red rash look to it and has tiny blisters all at the back that swell when I eat(it hurts!). I severely doubt it is reflux as I have taken antacids and slept upright with no effect. My lymph nodes in my neck on the right side are swollen, probably my armpit ones are swollen. The left side of my upper throat is where I feel the swallowing pain/discomfort. I have quit smoking pot a month and a half ago because every time I would smoke it would amplify my pain. Every day this gunk is coming up...I'll add a picture since a picture is worth a thousand words. Sometimes it's more blackish. Usually comes up mixed with saliva and has multiple globs of it.
I have been tested for the following:
Strep 2 times both negative
had a sed rate blood test...only my neutrophil count was slightly high
the std tests...( I am retesting in a few days just to make sure)
x-ray of chest was clean
ct of sinuses ...not a big problem
The gunk I am spitting up has been tested to see if it was blood twice...it's not blood. It's too much and weird to be tar from smoking...might be a mixture of that and something else....maybe a fungus???
Current symptoms:
My upper throat has a grinding/painful feeling when I swallow(on the left side)
My throat has a red rash look all around the back with very tiny blisters I can usually only feel, not see.
Sometimes when I eat my throat gets swollen and painful...no matter how mild the food.
minor chest pain...could be stomach pains? and pains down center of my chest...might have esophagitis combined with something else.
I have developed a painful canker sore?? on the underside of my tongue.
I hack up plenty of that strange black brown gunk. In certain light...it is almost greenish.
...sometimes my heartbeat can be felt all the way up the left side of my neck throbbing pretty loudly

I thank everyone who has taken the time to read this...hopefully I can finally start getting better soon with help from you... much much much appreciated

Please...anyone who has a good idea of what it could be...let me know what you think...I don't have insurance and this is becoming very costly and painful.
I just got my GED and this has taken over my life.:(

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