Discussions By Condition: I cannot get a diagnosis.

NO diagnosis and getting worse, scared

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: jennmommi
  • July 29, 2008
  • 06:45 PM

I am a 28 yr old female. Mom of three children age 6 and 4 (twins).
The beginning of February this year I woke up one morning feeling fatigued, stiff, sore, and my right shoulder blade was in excruciating pain, I was coughing a dry cough and had sinus infection and UTI. I also began having migraines on one side of my head (the right side) almost constantly.

I had been going to the gym 3-4 tims a week and suddenly could not even walk across the room without having shortness of breath. I was also having chest pains (angina). I immediately went to the Primary care Physician and found that I developed high blood pressure and a high resting pulse rate. This was practically over night, I had been to the Dr for my yearly exam about a month before this and my BP, pulse and everything was normal. Went through 2 rounds of antibiotic, 10 days of pain meds, and was put on a beta-blocker for the BP/heart rate.

My SED rate and CRP are elevated as well as my ASO titre levels. I have some RF, but it was not high enough to suspect Rheumatoid Arthritis even though I have many symptoms of it including systemic inflammation. The joint pain is symmetrical, my fingers, wrists, knees and ankles are all affected. It has progressed to the point where I can not even open a shampoo or button a blouse, even gripping this is hard and I drop things constantly.

Lupus was negative, Diabetes was negative, Fibromyalgia was negative, RA was negative, Thyroid was negative. My EKG had negative precordial T-waves and I see a cardiologist next week for a consultation.

Dr thinks it is some kind of rheumatic disease but no clue which one.
I am miserable, it is getting worse, and I have been to 4 Dr.s who all said different things one said it was "all in my head" one said I needed to "exercise and lose weight," my PCP is trying to help, but just isn't sure what this is. I feel like I am dying, and can't do anything about it. I went from being very active to barely able to make it through the day and can't play with the kids or exercise at all.

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