Discussions By Condition: I cannot get a diagnosis.

new memeber, advice most welcome...

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: michelle40
  • September 19, 2008
  • 08:59 AM

my names michelle and im 40 years old, i have hashimotos thyroiditis and have since i was 27 yrs old, the gene for this is so strong it has spanned 5 generations on my mums side of the family from my great nan, to nan, to mum, to myself and also my 15 yr old daughter, i know that autoimmunes come hand in glove with each other and that if you have 1 the chances are that you will have more following as auto immunes dont come singularly. i have been ill for two years now and my thyroid is totally stable, ive been sent to see a rheumatologist, who performed untold blood tests and x-rays etc, all have come back negative and so have been made to feel like its all in my head!!! the pains i get are certainley not in my head, im at the end of my tether and dont know how much longer i can go on like this, ive been tested for lupus, ra, sjorgens syndrome but rheumatoid fator was negative, my mother and gran are both riddles with ra, and i know in my heart thats what i have, here are my ACTUAL not in my head symptoms....
severe joint pain and swelling, knees and hands are the worst, burning and cramping as well,
dry mouth all the time with burning throat and tongue
dry itchy skin, that has a patch under belly button which flares up, itches and blisters, this has been for 2 years...
nodules on the base of big toes...
constant sinus infections and flu like feeling...
pins and needles in fingers...
hot and cold sweats...
mebstrual problems....
always tired and very emotional, cry very easy...
hot sweaty hands....
trouble sleeping as my legs dont feel right, they kick out and move like they are fitting...
please, any advice would be so appreciated as i really dont know where to go from here, i was told that negative rheumatoild factor isnt always right, has any1 else had these problems or symptoms, thankyou so much
michelle...:(

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