Discussions By Condition: I cannot get a diagnosis.

New Info on CFS and XMRV

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: taniaaust1
  • June 23, 2010
  • 10:11 AM

It's going to be confirmed!!! The news has just leaked out, its been now confirmed by the FDA and the NIH, there is a strong connection between CFS and XMRV. (for those who dont know this virus is also being found in higher amounts of population with prostate cancer - 25%, atypical MS and Autism, so appears a quite serious virus to have!!)

For anyone who dont know what is going on.. a study last year showed

" the Lombardi-Mikovits group at the Whittemore Peterson Institute (WPI), the Cleveland Clinic and the National Cancer Institute (NCI) reported that 67% of 101 chronic fatigue syndrome (CFS) patients tested positive for infection with xenotropic murine retrovirus (XMRV). Only 3.7% of 218 healthy subjects tested were positive for this gammaretrovirus"

Anyway the info coming out of a leak says that the NIH and the FDA has confirmed this study and its soon to be made public. http://www.forums.aboutmecfs.org/showthread.php?5847-FDA-and-NIH-confirm-WPI-XMRV-findings-(report-of-leaked-presentation)

Is this good news for those with CFS or not. I personally dont know, Im very worried as the only other two retrovirus's humans have are AIDS and one which causes Leukemia, retrovirus's alter the DNA and so far have been seriously dangerous in humans

What if it's sexually spread (which is likely if it's spread by blood) or worst.. spread by saliva. My sister seems to possibly have caught CFIDS from me and we have both CFIDS and prostate cancer in my family.

The American blood banks are "strongly discouraging" ones who have had CFS from donating.. that news was offically put out last week (Ones with CFS were banned last year from donating blood in Australia, New Zealand, England but America said they wouldnt stop blood donations unless they had more evidence...so with their change, the CFS communities knew the CDC was even more concerned.

They are preparing for this big announcement and possibly trying to fix the contaminated blood banks before making the big announcement which may cause panic.

So nearly 70% of us are affected with an hardly nothing known about virus which appears could be dangerous. Anyone else with CFS here? how do you feel about this?

Reply Flag this Discussion

1 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.