Discussions By Condition: I cannot get a diagnosis.

Needing help in regards to lafora

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: vero19
  • September 25, 2008
  • 08:07 AM

hi i am needing help on behalf of my mum who is a 53 yr old womn who was diagnosed with lafora in 2006. as this is not common in adults (well not actually seen in adults) she has all the symtoms of lafora and i am wonting hip from someone in why she is deteriating so fast??
she is unable to walk , shaking, eye sight not the best, dementia, low in iron , ceasures and all the other problems that comes along with lafora. s we live in sydney Australia there is no reasearch on lafora... if some one could please help me with any usfull information i would be much appriciated!

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