Discussions By Condition: I cannot get a diagnosis.

Need Help - Tired of Guessing

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • March 10, 2007
  • 03:06 PM

hello. i am a 40 yr. old woman. i had a total hysterectomy at age 39 for a large fibroid tumor and multiple cyst on ovary. i also had a thymectomy in november 2006. i have been dealing with muscle weakness, extreme joint pain (ankles, elbows) for about 4 yrs. now. they have done all the blood work for arthritis and thyroid and they all come back normal. one blood test that came back high a few yrs. ago was my "c-reactive protein", it was 78. they did not seem alarmed by that. my cholesterol levels are not good either, LDL is 499, HDL is 28, Total is mid 200. i have had stress test, and ekg's (since heart problems are in family), and they come back normal. blood pressure stays around 110 over 70. since my hysterectomy (no hrt), my joint pain and muscle weakness has increase two-fold. i feel like i am in my 80's and i am only 40. needless to say that causes problems in my life. i am a mother and wife - and do to my dibilitating condition - i am not able to be at the level that i should. i was out of work for 6 months and that caused complete financial destruction for us, but i was very weak and hurt during that time. they found that my thymus was still present through a ct scan. therefore they operated to remove the mass. i went to my doctor last week because i truly feel like there is something terribly wrong, health wise. i have been experiencing on and off dilated pupils, since the thoracic surgeon put me on tramodine (for nerve damage from operation). i stopped taking the meds but i am still getting uneven eye dilation. i know when it is happening because my eye area begins to feel puffy and i begin getting a pressure headache. sometimes it is hard for me to walk because of the pain in my ankles and feet; and my legs are so restless at night. my elbow pain hurts so much you can't touch them or lay them on anything cause it hurts; and it causes me to not be able to open jars, fold laundry, comb my hair. i have gained 50 lbs. since my hysterectomy and my eating habits haven't changed; i am just getting fat. and on top of all that my nerves are shot from all the financial and pain issues. i have to talk myself into going to work everyday, because i hurt so bad i want to stay in bed. i go to work and when i get home i am exhausted (and i have a desk job). now this week i have developed a lump on my right wrist that effects my thumb movement and i cannot twist it. the lump continues to get larger. my doctor ran another whole set of fasting labs and i have not heard back from her. she also gave me samples of "mobic" for my joint pain. i took one dose and it caused horrible abdominal and heartburn. i have reflux and take nexium 40mg daily. so i did not take another dose. it is hard for me to take anti-inflammatory meds because of the erosion in my esophagus and my gastro issues. i also have been on lexapro 20 mg for 2+ years, but i am actually coming off of it; i take 10 mg nightly at this time. i am totally frustrated and i am so angry of having this pain and fatigue at my age. i believe it is truly throwing me into a nervous breakdown. I JUST WANT A DOCTOR TO FIND THE ANSWER SO I CAN LIVE NORMAL AGAIN.

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