Discussions By Condition: I cannot get a diagnosis.

My Sister Has Been Sick for 6 weeks

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: 4MySister
  • August 26, 2008
  • 00:44 PM

My sister has been very sick for 6 weeks now and no one can seem to tell us what is wrong. She cannot eat, she is very fatigued, sleeping hours a day and too tired to do any of her normal activities. She has had a constant low grade fever (100 to 102) for 6 weeks solid. She has night sweats, almost every night, and she has lost over 15 lbs, and she was too thin to start. She has no appetite and food makes her nauseous.

She has been to a GP, an Oncologist (she is a breast cancer survivor) and an Infectious Disease specialist and they have done many tests, ruling out many things, but unable to tell her what she has.

They tell her that her "SED rate", or "CED rate" (??) is very high, over 100, but we don't know what a normal "SED rate" would be. They told her that she is anemic, and her red blood count is low. They told her there is blood in her urine samples. They told her that there is a "thickening" in her lungs, and possible granulomas, which might be Sarcoidosis, or might be unrelated to her symptoms.... but still no diagnosis, and they just keep telling her to come back for more tests.

They have ruled out Lyme disease, Lupus, Lymphoma, Valley Fever (?), many other fevers that are viral and known in her area.

She is in a small town, and I almost think she should go to the nearest big City and go to a really good hospital's ER, but she says they would probably send her home without a diagnosis.

Does anyone have any input? I'm getting really scared as this goes on and she continues to lose weight and energy. She is fading away, and its really scaring us.

Thanks for any feedback!

Worried Sister

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