Discussions By Condition: I cannot get a diagnosis.

My 3month old rolls her eyes and curls over to other side

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: CarolA1224
  • February 13, 2007
  • 05:59 AM

My 3mo daughter started rolling her eyes to one side and curling her body to the opposite. The 1st noted one occurred on 12/30/2006 when she was almost 9wks old. We took her to the ER and they ran a CT and did a bunch of bloodwork. While the CT was negative, they decided to admit her for 5 days while providing her with a "broad spectrum" of antibotics while they waited for bloodwork and meningitis results. She had NO fever during this and it lasted for about 4hrs. She had an EEG and MRI done, all came back perfectly normal. Her bloodwork was perfect, though she did leave the hospital with more antibotics (Cephlax) due to a possible infection from the IV.

She has had 3 more of these "episodes" since then; all 2 weeks apart. I noticed that it alternates with each episode and then she kind of keeps her neck "curled" to the side that she had the episode with...kind of like she's got a neck cramp...she moans during it and I noticed that she does fall asleep during the "episode" but when her body twitches...she starts that eye-rolling thing going again for about 10secs. She does come out of it just fine and there doesn't seem to be any developmental delays or setbacks. 2 neurologists and 1 pediatrician have said that it could be due to acid reflux and that they do NOT think that it's seizures. I disagree b/c why would that only happen every 2 weeks and not all of the time? Why would reflux only happen when she's waking in the morning...not during the day after waking from a nap?

She is a breastmilk fed baby, 98% bottle b/c she still falls asleep at the breast w/o eating enough. She does get 1 formula bottle due to me not having enough milk for both her and her twin brother; most likely due to pumping instead of them latching...he also doesn't like the breast...

I'm at a lost b/c I feel that the docs are missing something and I'm terrified. It took 4 years of fertility treatments to get her and her brother and I'm so afraid that she'll be "taken away" from me. Has anyone heard of something like this?

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