Discussions By Condition: I cannot get a diagnosis.

MS or no MS? If not then what?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: jdub1a
  • June 24, 2008
  • 08:44 PM

I will be as brief as possible; here are my symptoms
-MRI shows non-specific white matter hyperintensities
-4th nerve eye palsy
-negative spinal tap 3 yrs ago
-negative evoked potentials 3 years ago
-recent EMG negative
-now developed right foot weakness; impending foot drop
-sometimes bite tongue when talking
-sometimes trip on level ground
-urinary symptoms; worked up couple yrs ago; all negative
now have urgency; no infection; prostate fine
-often mildly off balance; bump into walls
-fell once when trying to run
-memory not so good; always have to think to remember date

I have been to 3 neurologists without an answer. Not enough to meet criteria for MS. But then what is it?
I am quite sure it is MS but more manifestations, like a foot drop are coming. My theory is that high dose Lipitor (shown to have immunomodulating effects) has suppressed OCBs in the spinal fluid and the development of typical MRI lesions. There was a study showing the latter.

I am a physician myself. I need an answer!!! Not knowing is killing me. How do I live the rest of my life?

Thanks

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