Discussions By Condition: I cannot get a diagnosis.

Migraines, Sleep Apnea, Graves-> Hypothyroid + Hot Nodule, Low T and Low Vit D :)

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: sparkinson
  • July 18, 2009
  • 01:46 AM

These are all the conditions I have been diagnosed with and am being actively treated for. Are these part of a bigger problem, or am I really that unlucky to have all these separate, chronic, illnesses?

I have been tested for a myriad of diseases, including Lupus, Rheumatoid factor etc. I had an MRI that showed a potential tiny lump in some not very important part of my head - if such a place exists :) - neither the Endo nor the Neurologist seemed bothered by it. (I have a followup in a couple of months to see if it has grown that will include a more detailed scan of the pituitary) I will have blood tests for prolactin and one for the genetic disorder hemochromatosis to figure out why my Testosterone is low.

So, can anyone put these problems together into one disease / condition, or am I just plain unlucky with a lot of illness'? It's so hard to balance all these hormones whilst trying to avoid the persistent continual headaches, the occasional once per week migraine (now they are mostly under control) and the extreme fatigue and brain fog that goes along with all of these conditions.

FWIW, I am taking 20mg Nortiptyline and 20 mg Citalopram for the Migraines (I don't have any depression - I was sent to a psychiatrist and psychologist who both thought I was in remarkable good spirits considering all my illnesses and I also don't notice any mood changes on them) these generally seems to help a lot without much in the way of side effects.

Up to 3000MG Gabbapentin (Neurontin) per day when the headaches are bad- that stuff is an absolute marvel, but it makes you eat like a moose and sleep like a bear.

The usual 100 MG Immitrex if I catch a Migraine coming on.

180 MG Armour Thyroid (just upped from 120 and possibly responsible for my current 3 day headache)

5MG Androgen for the Low T, just started a few days ago and also possibly responsible for this headache.

CPAP for the Sleep Apnea.

Just finished 25000 IU Vit D supplement once per week.

Also take Migralef (lots of Magnesium) for the migraines too.


Thanks in advance for any insight anyone may have,

Simon.

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