Discussions By Condition: I cannot get a diagnosis.

Many tests no answers for 8 months

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: heathersmom
  • May 25, 2008
  • 09:03 PM

My daughter is 33 years old. She was diagnosised at 15 with hypothyroid and at 20 type i diabetes. In May of 05 she was involved in a car accident that resulted in her hitting her head on the steering wheel. She was experiencing headaches, facial swelling, nasal drainage and high blood pressure with these headaches. We went to many drs and ers only to be told it was due to her diabetes. In july she started with blurring vision, each week to the eye dr and by the end of August her vision was 20/400 in each eye. Sept 07, I finally was able to get a dr to order a lumbar puncture and her pressure was 29, she was put on diamox for a week. Day 5 of the diamox she had bilat strokes to the occipital lobes. Heather was admitted to the hospital and had a vp shunt put in her brain for pseudo tumor cebri. 48 hours after her blood pressure started going crazy and now has orthostatic hypotension. I don't want to go into all her hospital stays, the physicians have plenty of diagnosis's but no clear diagnosis of what is causing all these issues to happen. Since September 07, seizures, but eeg's are negative, blood loss 2 grams in 24 hours requiring numerous blood transfusion, in a month and half her heart ejections rate has gone to 10-15%, gastroparesis, myra in her urine that keeps coming back, pres syndrome, 6 strokes, altered mental status, renal insuffiency, hypertension, hypotensive, blood sugars that range from 20's - 700's, pulmonary edema resulting respiratory failure resulting in tracheotomy being on a vent and bypap, autonomic dysfunction, nephritic syndrome, cardiomyopathy, proteninuria.
I don't know if anyone can help, I am constantly searching for answers.
Laurette aka Heather's mom

Reply Flag this Discussion

3 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.